WOW it’s been rough lately omg. My bad quality sleep has made my symptoms start flaring up. Stupid paranoia last night kept tossing and turning because I felt a side of my bed wasn’t “safe” again and couldn’t reason my way out of it. A real pain. I forgot that off benzos I get bad anxiety at night that I’ll experience psychosis again (ptsd ) and it keeps me up. There’s so many things you can just forget you even have when on meds.
I was able to re-stabilize before and was going to sleep without meds right? But wasn’t I also sleeping all day? Yikes. I need to be keeping a better record of this stuff.
Maybe I will need to be on sleep aids forever…but that’s such a dangerous game because of tolerance and they can just stop working whether you want to stop or not…ugh…anyways I’m so out of it today.
I am on 300 mg of trazadone…no tolerance or addiction worries…you might consider that…Angie only takes 50 mg of trazadone…I just need a wallop to knock me out at night…I sleep almost 10 hours a night.
Yeah I did switch my neurologists and they prescribed me the xyrem and I’m just waiting for the SINGLE pharmacy that prescribes it to sort out things with my insurance now. It’s taking a while. I think it’s only been like 1 maybe 2 weeks but when you have serious sleep issues (or mental health issues or ANY kind of serious issues!) that’s quite a long time That’s why my old neurologists office didn’t seem to understand, taking 2 weeks to get back to me after each phone call and not being able to get me in for an appointment months.
Since I am not allowed to be on those other meds for xyrem I would have had to wean off anyways. I figured the process would take 2-3 weeks and by that time the xyrem would be ready if needed but I haven’t heard back from them yet
I did the whole trazodone route. Trazodone on its own did absolutely nothing for me, I had to combine it with a benzo, and even then I gained tolerance to it very quickly and was continuously upping my dose. I forgot how high I got dose wise but it was a decent amount. Gave me gross side effects. I’ve taken serious prescription sleep aids (at highest recommended dose!) before and had them have no effect or only work a night or so before losing efficiency. My brain is messed up
) and it keeps me up. There’s so many things you can just forget you even have when on meds.
That’s why my old neurologists office didn’t seem to understand, taking 2 weeks to get back to me after each phone call and not being able to get me in for an appointment months.
