Religion and politics I can understand.
@fractaled and @nadadenada for mods, I reckon. That would shake things up a bit!
I can see the point of the moderators, to try to provide a safe place where people can discuss our problems, without it overflowing. The site is probably no doubt under scrutiny, and this is another reason to stick to the conventional.
Having said that… I have been frustrated with threads being shut down before, simply because someone didn’t like the topic. In my opinion, if you don’t like it, don’t read it.
Also, I’ve never made any bones about it. I’m on Abilify, but it does nothing for my symptoms. Quite honestly I’m going to talk to my doctor about taking the off them. I have to pay for medication out of my pocket, and if it’s not helping why take it
The long and the short of it is, do you get some help out of the board? Even if it’s not everything you want or need, it’s still better than a Kick In The Head
Yes, even with all these scruples, I do feel like the forum helps. There aren’t people who could as easily relate to me anywhere else. But it sucks being ostracized for what I believe is best for me by holding out on meds.
Some people do get better without medications but it is a smaller percentage compared to those who take medications.
I agree the moderators ought not to be too restrictive. I was commenting on a thread about my so-called delusions and the thread was closed.
Anyone would think that you don’t like being fat or cognitively lessened by meds, or something.
My psych says that I don’t eat enough! I’m like I don’t want to be obese lol. I maintain at 1550 calories and that is all i can have thanks to your meds!
I dont see why. Religion IS the answer for billions of people and why cant we have a say in polotics. Oh, just take the pills and enjoy the side effects…
I agree, your personal choice is no one else’s business. I feel the same, believe me
Just because it’s a small minority, doesn’t make it any less significant than any other grouping. It’s just as important.
We all have our opinions. People who don’t take meds push their agenda just like those of us who take them.
The reason that the majority of schizophrenics on here take meds is because the fact is that meds help the majority of schizophrenics. It is recommended by people on here to tell others to take meds. I’m just an average schizophrenic who got lucky and can work and do other things.
I just want to testify that I don’t feel it’s a control issue by psychiatrists. Psychiatry and prescribing meds is not an exact science. I just recommend meds to people for the fact that people off them seem to suffer more than those on them. And also relapse more. That’s what I’ve seen over and over again over the years. I’m pro meds but I don’t take it personally if someone wants to stop taking them and risk a relapse.
Well I don’t. I also don’t want to salivate all over myself either though. I don’t want to act child like. I don’t want to produce breast milk while I’m not pregnant, or if I were male. I don’t want tremors. I don’t want to lose my sex drive. I don’t want to experience negatives as a constant. And I don’t want to go through any of that, on the very real probability of the meds still not touching the positive symptoms. Psychosis has been much easier than any of that imo.
I would rather see stories of recovery of people coming off medications over a period of time, too. But, even though I read research that about 20 percent of schizophrenics completely recover, this forum seems to have none of them. Also, research shows that resilience is crucial in recovery, but there is no talk about that. The views are restricted to medications…and those that don’t take are ostracized rather than encouraged to get better in a way that is compatible with their outlook on life.
I agree that sometimes the Cure is far worse than the symptoms. I can handle the voices, it requires perspective and diligence, but it is manageable.
What I’m not going to do, is take a medication with a risk of relapsing into depression. I’ve been to the bowels of hell, and I ain’t going back there.
Right, in my case med treatment has only hindered my progress, horrible side effects, even suicide attempts. WTH? So, its clear cut for me, pills are no answer.
The way I see it is… When I started hearing voices 24/7, I quickly found out it was up to me to figure out how to live with them, and I bet them they’d see my life improve. I since got clean, got out of a dangerous environment, and into a safe one. I’ve been slowly coming out of my delusions I’ve had the past several months, and the voices have been far more manageable now. I still feel like I’m improving my response to them, and until I hit a wall, and feel like I can’t do it on my own anymore, why take meds? I want to get as far as I can, through my own effort, before I seek out the help of a magic pill which is likely to bring other destructive side effects into the mix.
I had a similar experience with SSRI style antidepressants. They basically made me feel dead inside, which was far worse than anything I could have bared on my own
No relief whatsoever, huge negative side effects, and yet it was forced upon me under threat of being cut off by insurance
Sustaining full recovery in schizophrenia after 15 years: does resilience matter? - PubMed (nih.gov)
" Thus, a sustained, full recovery without medication seems possible for a subgroup of schizophrenia patients characterized by high resilience."
If you can manage the symptoms and function without meds then it would be ideal.
There aren’t many doctors who go for this type of method though where all the traits and symptoms can be identified and a relationship built between psych and patient to build a better life.
The psych has 20 minutes to diagnose and the only way they know how is to medicate. All done in those minutes. There is no hope of a system set up to manage sz in itself. they manage by zombifying the patient as it is easier and quicker.
You are pretty much going to find only those who go with the system here. Any dissenters aren’t tolerated, except by me.
I really think we need a section for people who are managing without medication. To me, this is an inspiration not a break from Towing the company line.
HUGE DISCLAIMER: ECT…
included
So @sledneck did that answer your question, or just confuse you further? Learn some coping techniques, apply them Faithfully and you will see progress. This has been my own personal experience