My life with sz

Hello everyone,
I hope you are all well and I am happy that I 'm communicating you. That helps I think.
So, I 'm writing to tell my problems because of sz. I would like to share them with you and you are welcome to tell yours. First are racism and lack of communication. All my life I 've been facing bulling, or “escaping” others from me or from talking with me. I miss talking with a person with no guilt, no bad thoughts that he/she won’t like me because of my strange behaviour, etc. How do you face it or you are not facing sth similar?
My second problem is lack of motivation. I want all day to sit and surf on the internet, nothing more, nothing else. I can’t even do the housework, I feel like I am 70 years old.
I also face eating disorders, I am overweight, in fact obese, and all day I am thinking about food. I can’t stop eating, I have gained a lot of weigt the past month. Not to mention how useless I feel, because of all these!
The last problem I would like to mention (there are many others as well but I can’t make you tired), is total lack of libido. I see other people making relationships, enjoying sex, enjoying life, not feeling lonely and I can’t have all these.
Sorry if I was tiring, but sharing my problems helps, and I wouldn’t like to just write sth that’s not so important to me. I hope you understand me and write me your experiences and how you face them. I wish everyone the best.

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Yes it does help even if nobody answers or reads the post I feel better afterwards.

I think the forum is a great cheap form of therapy.

The few times that I went to a nut cracker all they did was listen and nod a whole lot and take notes.

The last time I went the doc left the room to get me some pamphlets so I took the opportunity to look at her notes as she was writing something down every time I said something and It was like her excersise routine that she was writing down LOL it was like mon.30 min treadmill ,20 body squats etc.

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Sometimes just writing your thoughts in your private diary may help. I do not think that this forum can take a role of a therapist but on the forum we can communicate matters that are similar with all of us, it is a support system.

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Since my condition has worsened I fear my memory might start fading also so I started a journal and thats a great idea.I forgot to say that you should prolly see a therapist also.

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Thank you for your answers, I am seeing a therapist, in fact, writing here helps instead of writing on a diary when noone sees, I miss communication with people, not being a writer or sth.

You’re describing the negative symptoms of sz. I am subject to them too. I feel really bad about myself when I sit around and do nothing all day. I’m about seventy pounds overweight. I can sympathize with you. Have you tried Abilify? It’s the only sz drug I have taken that helps with the negative symptoms of sz. I had to get off it because it got me too amped up, but you might give it a try. It might help you.

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Thank you, but Abilify doesn’t work for me, I have tried it. I was very anxious and couldn’t sleep at night.

I’m sorry redrose. Know your not alone. I’m on this forum all day to combat isolation and lack of thought. Are you stable and positive symptom free? Negatives suck as well they are just as much a barrier to living a full life.

My first psychotic break never really ended. I’m stuck in the same reality that was established over those first few months. Voices all day and telepathy from people. I feel like I have been turned inside out and corrupted by this situation. Mom on my way back to being myself, and the voices are kind of letting up.

Perhaps a med change would benefit you. I know how difficult exercising can be. Lack of love in sz also seems to be a “symptom.”

We’re here for you always, stick around.

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You are so kind. Thank you so much for your support. I have both negative and positive symptoms unfortunately. I have had the illness for more than 15 years since now. I used to be well on meds (Risperdal mostly), but then I changed medication many times and that’s why (or because my illness got worse), that no med now works for me. I haven’t tried Olanzapine (because of the weight gain, I 'm already obese) and Clozapine (because it is dangerous). I am on Risperdal and my doctor says that no med can kill the symptoms, only control the aggressiveness. I don’t know if he is true. What do you think?

I’m on respiridone and was on invega before that. It seems in my case the only thing that really has helped me is finding peace and solidarity for myself. Meds didn’t do much it’s been a gradual climb back from my psychotic break. I’m hesitant to try new meds because my pdoc said respiridone was as good as any and the cost of newer meds. 15 years is a long time, I’ve glad you’ve made it this far.

I hope the best for you redrose.

And I don’t know what the meds do you kind of have to be lucky for them to do anything. It is certainly worth a try though, for some people it’s a cure all.

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I feel the exact same. You just described me there. No interest in sex and a dirty house with chores piling up. Life is passing me by.

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Seriously? JeeeZZZZ!