I know most of u know how hard it is disclosing sz. But telling ppl u lay in bed all day is on another level. I have 5 siblings who all have partners. I dont know how to tell them, much less talk about MI. I couldnt even tell my gp when he asked what i spent my time doing.
How do u all do it? The high functioning ones have it easier. It’s hard to even talk about it on this forum, the bedridden part, it makes me comfortable and i dont wanna be a downer.
tv, reading or internet, that’s all i do while bedridden. but me personnaly, i am quite worried of staying forever bedridden like this… somebody can be ok with this, but me, i am not too…
what do you do in bed esm, moy brat zdes?
dont you ever go outside in fact? me, still very few…
This is tough. I’m in school now, but I only go two days a week. I’m lucky that I can do that, and that it gives me a wealth of things to talk about.
But today is an off day, and I woke up at 12:30, got out of bed to feed the animals and let the dogs out, then crawled back into bed. It’s now 6 pm and my co-person is due home from work. I just took a shower, am going to get back into my pyjamas and go sit on the couch with her and study until I can go back to bed.
It depends on where you’re coming from. Do you want help from your doctors about this? Then maybe say, “I’m having troubles getting out and about and getting things done around the house. Can you make any suggestions?” Ask a friend if they wouldn’t mind taking a walk around the block with you a couple of times a week.
If you’re more concerned with just getting out of the conversation, think of longer range projects or interests. “I’ve been studying…” or “I’ve been building…” or “I have a chronic illness that makes getting out difficult sometimes, but I’ve been planning to/thinking about/looking into…” and then talk about your subject rather than your schedule.
in fact i am on my couch for 7, 8 hours and then i move on the bed. I distract myself like this. couch, bed, coach, bed… i dont feel tired though, i just lack the will to act passively plus my fears stop me to live actively too. and the negatives. But you know, i am in one room since 16 years, i wish this would change already… its really the time to change, idk…
I spend most of my time in bed, the couch, or chair on computer. Have u tried playing video games so u get out of bed for a couple hours and distract ur mind?
you feel tired esm to be in the bed? Or depressed? Or the meds do this to you? since how long you are like this?
try to get up a bit then and walk in the room a bit if you are depressed…
I’m ‘lucky’ that I’ve akathisia/rls or whatever and even when I’m in bed I have to move my legs back and forth like crazy. I think you can do many good things without leaving your beloved room like pacing or exercising…
I don’t know, to me bedridden sounds as if you are resting and not doing anything.
sorry zeno, i can be quite awful sometimes even here… Yeah, i pace in the apartment of my mom. she lives in the same building here I can start doing it here also. yes, ill try to continue doing my home bike too. i know, i should continue doing efforts…
akathisia is quite hard i find, sorry that you have this. But it goes away with time isn’t it? hmm. sorry, i was really bad today, i am only interested about myself…
I’m sitting in a chair most of the time. Either reading, praying, meditating, playing keyboard or on the computer. The only times I’m active is when I’m either walking to dinner or climbing the stairs, (maybe once or twice a day), or doing yoga. My weight, blood pressure, lipid profiles and sugar readings are all good so, I’m not too worried. And, I don’t smoke, thank goodness.
I just lay there with my eyes closed. If i’m ever alone in my apartment, which is majority of my life, that is what i prefer to do.
I cant stand video games since severe anhedonia @anon89143308
That’s a good answer, the rest u mention would be dishonest of me.
And @Gina2 i thought u said u lived a full life in a previous thread, doesnt sound full to me, at least not my standards.
Just mental issues @everhopeful, i am exploring being more active, but like i said, if ever alone in apartment, due to severe anhedonia that is what i prefer to do, nothing. Hate sustained atttention. I got avolition bad as ■■■■ too, especially since apartment went non smoking.