Just curious. Ever since I got into hs my energy level has been frustratingly low…if it was possible I could sleep for pretty much an entire day. I remember I used to get home from school and sleep until dinner, then try to fight falling back asleep. It makes studying today difficult because the energy just isn’t there.
And the new meds they want to put me on are supposed to make me even more drowsy. Sigh. Still better than dealing w anxiety though.
Before my Dx I worked full+extra time standing on my feet all day5-6 days a week, helped (ex) husband at his photo shoot things (?) including almost every show at a 10k seat arena…(talk about being out of my comfort zone), then on my two days off, pick up and deliver items for (ex)'s shop-about 3hours round trip, then clean house the next day off. In between there was always things to take care of for family-in laws, moms,pops, brothers sisters neices nephews…
After Dx?
Today?
If I get out of bed before 4Pm, change my clothes, and get something to eat,
I’m good.
I’m tired.
When they had me on high dose klonopin I could sleep 18 hours straight. Now it is about 8 hours.
So the medication really knocked you out, huh? Or by before dx do you mean before the sz set in?
I don’t feel sleepy with the meds, but I feel like I am tired all the time, without wanting to go for sleep. I can’t study as you said, concentrate on people’s speech and work. I am on tension and represion all the time, perhaps that is a sign that we should lower our meds. 
My energy level is better than five years ago. Nowadays it’s a struggle to get out of the bed but once I’m up and going I’m okay for a few hours after which I will start pulling the amps again. If I’m active for a full day…the next day I’m waisted. I try to live a balance between the rest I need and what I can do.
My energy level lately has been that of molasses moving uphill in January. 
I have been this way all my life. Didn’t know it called “Sz” until I got the label stuck on my forehead.
Told the pdoc I didn’t agree with the label, so he gave me 3 descriptions of what they consider Sz, and I had to admit that yeah, that described me.
By the time I was prescribed meds, I was beyond depressed…and tired.
No matter what Rx They prescribed, I dissapointed them by not improving much, and complaining about the side effects more-mainly being tired and gaining weight.
One pdoc got rather insulted when I protested gaining 15 Lbs in little over two weeks, blaiming the meds, she explained louder than neccessary that the pill itself has ZERO calories, therefore it couldn’t possibly be blamed for the extra weight. Maybe it possibly increased my appetite, but it was my fault for putting too much food in my mouth, not the pill, so stop being stupid and take your meds.
Years later they did a study and what do you know?
They discovered this med causes weight gain, know the name ?
zyprexa/olanzapine.
The tiredness comes and goes, but I suspect it’s due to a genetic heart defect that affected my mom, and now my brother-who is one year older than me.
Because of the Sz label, the Dr’s dismiss my concerns and say that I’m not “cost effective” to treat, meaning I’m not worth spending money on to prolong or improve my life.
Sheesh…
I’ve been studying alternative methods of treatment for those with medication resistant strains of sz (or for those who aren’t able to take the meds due to health reasons, like kids and adolescents). Maybe in the future I’ll be able to find some more effective treatments for someone like you! That’s the hope anyways.
I’m sorry right now is so rotten though. Your pdocs sound like they were acting unprofessionally 
My energy levels are usually pretty good. I have more of a problem with having enough motivation to use the enegy I have