Went to the Mayo Clinic

DX'd - Sz/SzA
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So, I flew to the Mayo Clinic on Monday. I had an appointment on Tuesday. The reason I was sent to the Mayo Clinic was because a local psychiatrist didn’t think I fit the diagnosis for schizoaffective disorder and also because I have so many neurological symptoms.

Hubby and I talked to the Mayo Clinic doctor for about 2 hours. At the end, he basically confirmed that I really do have schizoaffective - bipolar type, and he explained why. He also confirmed that I have 2 movement disorders, likely caused by the AP’s, starting with Invega Sustenna, back in 2019. So, I have both tardive dyskinesia and cervical dystonia. I guess I’m just lucky.

Anyway, it was a good visit. Really helped to clear some things up. And we got to hang out with my aunt, who lives in Rochester, MN.

Just wanted to give an update, because a few of you wanted to know how it went. :elephant: :sunflower:

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Glad to hear they were able to clear things out.

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Glad you were able to get thing sorted.

I hope knowing what you’re up against helps you in the fight.

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I’m glad it went well. :whale::whale::whale:

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I’m glad it was a good visit.

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Glad you gained some clarity @Blossom

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I’m glad they figured it out. Is there anything that can be done about the TD? About the cervical dystonia?

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I’m glad to hear that they were able to confirm your diagnosis and hopefully they gave you a strategy to use going forward.

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Good you feel like you got some clarity and that you got to see your aunt.

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My only real option is Clozapine, because it has a low risk of movement disorders. The doctor thinks it might help reduce the movement disorders that I have, but they likely wouldn’t completely go away. The other side effects of Clozapine scare the crap out of me, though. So, I’m not really sure what to do.

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I read after asking you that there are treatments for both problems. Medication for TD, and medication, physical therapy, and sometimes even surgery as a last resort for your cervical problem. Want me to post links to the info?

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Yes, please! Thank you! :blush:

I currently get botox injections in my neck, shoulder, and back, for the dystonia. Definitely helps, but not as much as I would like. I’m not on any treatment specifically for the dyskinesia.

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@Blossom , this is a link for cervical dystonia:

Here is a link about Tardive Dyskinesia:

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They should’ve injected you with Benadryl. When I had Dystonia, the Benadryl injection instantly cured.

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They should’ve injected you with Benadryl. When I had Dystonia, the Benadryl injection instantly cured.

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I have tardive dyskinesia. I have a tremor in my left hand and I take propronolol three times a day. It works for me.

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There is no cure for cervical dystonia. In some people, signs and symptoms may disappear without treatment, but recurrence is common.

Oh, my mistake. No cure for Cervical Dystonia. I guess I just had regular Dystonia or Dystonic reaction.

I would still ask about Benadryl injection. The Dystonic reaction I had was an allergic reaction to Abilify 10mg.

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