Has anyone else here developed tardive dyskinesia/dystonia after going on anti-psychotic for a while? If so, what meds were you on, and for how long? How did you deal with it? Did you switch meds, or take other meds to offset the effects?
As you may have noticed, I am trying to gather info here. I’ve been on Ability for about 2 years, and starting fairly recently I’ve been having problems when I walk–it’s been painful and sometimes embarrassing. My psychiatrist is switching me to Seroquel, but it’s going to take a while to complete the switch. He also read off to me from the computer that TD symptoms will persist after going off the meds for anywhere from a few months to years…
My psychiatrist suggested Benedryl and that did not work. I’ve researched this on my own and saw that some other meds and also Botox injections could be used to offset the symptoms of TD. But I have no idea how effective these are, or the side effects. Hence the post.
i had dystonia once from, i think, loxapine…maybe stelazine…it’s hard to recall exactly. i got a cogentin injection for it. was freaky…whole body was rigid and my muscles felt like rocks.
i do have eps symptoms and take cogentin for them, but no actual tardive dyskinesia, thankfully.
over the years i’ve taken cogentin, propranolol, and artane for them at different times, for different bits, to mostly success. i’ve not taken botox, but i hope you find something that helps.
I’m pretty sure that TD was around in schizophrenia before the meds were available but that since the meds are available, it is more prevalent in schizophrenia.
I would hate to get TD because it would mean my treatment team would want to change my meds, and my meds are working well as they are, thank you very much.
About twenty years ago I displayed involuntary tongue and lip movements that I presumed were the beginings of TD. Also, at the time, I was friendly with a psych nurse who looked at them and said she believed they were TD. Therefore, I made a phone call to my nutritionist. Over the phone, he advised I get some Phosphatidyl Choline Complex and take 4 X 1200 mg capsules a day with food. My symptoms went right away.
I continue to take Phosphatidyl Choline Complex in the same amount. I understand that it is more or less a “brain food”. Now in addition, I take 1 X 100 mg of Phosphatidylserine to help even more with potential TD.
The company I buy from is Swanson in North Dakota. I can recommend them. Their phone number would be 1 (800) 437-4148.
Interesting. Never heard of that one. Do you know why it works with TD? I briefly google searched it did not find any literature about it working for TD.
as per some reports manganese can eliminate tardive dyskinesai if used early enough .it is also supposed to be good for social anxiety .be careful of using high levels though
so sorry to read that, my son suffers horrifically from T.D Dystonia, there is no cure and he is in pain, and can’t control his movement disorder his neurologist has tried a lot of meds which bring with it side effects. I believe it was either the haladol or respirdal he started about 3 years ago and it doesn’t get any better. His psych. recently had him on seroquel and if you read about the side effects it has T.D. so I would try taking lot of vitamin E, and fish oil supplements. They do persist, and they don’t go away or get any better
I’ve been on clozapine for around 3 years now and it’s the only med that ever did anything for me, it’s kept me out of the hospital and apparently it’s the only med that has a low risk of causing tardive dyskenisia. It also had a tendency to work on non-responders to the other meds, if all the other meds don’t work very well for you you might want to try clozapine.
Seroquel is probably the best med with regards to not causing TD. I honestly thought abilify was good on TD so this is surprising. it is however.notorious for causing restlessness and can induce severe anxiety. Is this a pdoc that is handling this or your GP?
unfortunately, for my son he wasn’t able to continue taking the medication since you need to have your blood drawn on a weekly basis and his white blood cell count drop enough to where he couldn’t take it legally, you have to meet the criteria to keep taking it. It also caused him to develop Rhabdomyolysis, which is a breakdown of muscle tissue which is released into the bloodstream. Zyprexa hasn’t helped him at all
Hopefully you will be lucky and the symptoms will improve quickly. Is there any other med they.can use to combat the TD?