There should be more than (according to statistics) 200.000 or more? people with psychosis in Western countries who can afford internet. Why so few people on here?
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We are the 1% of the 1%. Most aren’t lucky enough to function as well as we do. Read the family side of the forum to see what I mean.
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@shutterbug I have read that family site and that is pretty messed up.
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I used to live across the street from a guy with schizophrenia who stood out on the sidewalk ranting and swearing at passersby all the time. It occurred to me that he was probably not a member of this site. That used to be my perception of people living with schizophrenia before I became a member of this site.
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I have an alibi.
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I admit the same. Then I got diagnosed myself. I think I still have not fully accepted my diagnosis, and also, I feel terrible for previously buying into the stigma. One thing about this diagnosis - it’s made me a much more compassionate person. I just need to work on it toward myself.
As far as this site goes, I do wish more people posted more often. I’m sure there’s loads of great people still to meet, and there’s plenty already here I would like to know better.
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It’s hard to find this website. I had been using reddits r/schizophrenia for a long time before I found this site.
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I feel this 
percent
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I haven’t been on the schizophrenia subreddit in a long time, but I remember it could get real dark. And it wasn’t particularly recovery-oriented.
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Read my post 28 years ago. I was that one guy severely affected with Schizophrenia and I only spoke quite simple English that only a few Anglos understood.
You learn so much on this board and I’ll really recommend anybody who are afflicted by these Illness to come here and even though your native tongue is another than English come here and commit in discussions with your fellow sufferers.
You must agree on that most here are pro meds. We do not support talking religion and we’re treating each other with respect.
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I just looked at schizophrenia on Reddit and it says
“131 online”
So that’s about the same as here.
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Forums arn’t really that active on any subject compared to how they were
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what percentage do the population have SZA/SZ? Are people doing better with the condition and don’t need this site and on the other foot people are too incapacitated. Truly where do we fit in?
And on Reddit I never even heard of that website before when I first started here. I found this site sooner…
Indeed. I wonder what percentage of posters get the reference of your moniker:
“Look on my Works, ye Mighty, and despair!
Nothing beside remains.”
Very insightful.
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Well, I still stayed here back in 2019 when I was doing stellar. Still a lot of support and camaraderie to be shared.
But when incapacitated, I run like hell. My paranoia takes over, I lose insight, and I not only forget how to ask for help, but I have the delusion I’ll literally get burned alive if I open the doors to my twisted head.
I know logically that it’s me projecting my father’s assurances that mommy would stop loving me and give me away if I told her what he was doing. But when I am in the throes of my sza, logic flies out the window completely.
The point of sharing that is not to garner sympathy, but to show that once insight evaporates, first I run from the board, and then I forget it’s even there.
If you look at my profile, it appears I am a new user. Nope. Been here since 2018. Anon’d my old account earlier this year when i wiped my digital footprint as completely as I could. Says a lot about how strong my paranoia was, that I kept track of the requisite two week cooling off period, yet was too messed up in the head to reach out for support.
I sound fairly coherent now…but at other times, my family could be writing about me on that family page of this forum…
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I have some statistical knowledge from my undergraduate degree. I maintain a couple of delusions, namely that I am a founding member of a small religion, and that my voices tell the truth, or at least, I can discern when they are lying. Consequently, after reading (in English) the latest epidemiological studies on schizophrenia and finding that the assessment considerable accord between narrative testimonials of the sufferers of SZ, I felt I should undertake my own unqualified epidemiological investigation of SZ as a meta-analysis, to see if it concurred with the qualified studies. This was done especially with respect to mortality. Generally, there was agreement for more than a decade that there were between 2.9m and 3.2m schizophrenics in the USA. There was recently some outage when the AMHD changed their methodology to affirm a new statistic of UA SZ at 375,000. My measurements concluded that the point prevalence of the US is1,431,900 cases.
I don’t know. I read here, on one thread that the family section of forum is sad. Is this really that bad?
Is it worth reading it? I actually ask honestly. I am quite afraid of… triggering myself and remembering what happened to me.
But I believe I need to read it.
I just wrote schizophrenia forum, and it was the first one on the result.
Not hard… what stopped me was fear of being open about it
And answering the question… IDK, I read that 50% schizophrenics function well enough to live independently.
But from my experience… it’s not that good. I also, like @shutterbug believe we are very lucky to function so well.
We have probably way more insight than… “casual person with SZ”
Yes. It is bad. And VERY triggering.
I think it’s great that side of the forum is there. It helps fill a very serious need.
But. Don’t go there. There’s a reason the patient and caregivers boards are separate.
One of our former mods (before being a mod here) had a thread years ago called Ask a Schizophrenic. The idea was for family members to be able to get feedback from an actual sz patient, since families and supporters can’t post on this side.
I joined her. Because I know what I put my own family through when my illness is at its worst. We had all good intentions.
BAD idea. We both abandoned our thread when it became so upsetting to see ourselves from the perspective of a supporter.
Don’t go there.
You don’t have to read it.
If you do, it will make you really upset and triggered.
I will never venture there again.
Fair warning.
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