Neuroendocrine tumour

Lounge
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I have just received an appointment letter that mentions having a neuroendocrine tumour. Me being me, and far from the bravest of people, I’m scared. I’m trying not to show my daughter I’m scared.

The intellectual part of me is trying to rationalise things. The tumour was found by a polyp removed in March. In the UK there is the 28 day pathway.

Copilot says: > The 28-day pathway is part of the Faster Diagnosis Standard by NHS England. Here’s a brief overview:

Key Points of the 28-Day Pathway:

  1. Purpose: To ensure patients referred urgently by their GP for suspected cancer receive a diagnosis or have cancer ruled out within 28 days.
  2. Benefits: Reduces anxiety for patients, allows quicker treatment initiation if cancer is diagnosed, and provides peace of mind if cancer is ruled out

I’m not sure if I’m still on it. What I do know is that the last endoscopy was done before the appointment to discuss removing my teeth. That took place late June. So it’s about 5 months at the very least since the last endoscopy. The intellectual/rational part of me says they’d have contacted me ages ago if there was something bad, re the 28 day pathway. I have pain but that’s re my legs. The left side where I fractured my femur . The right side probably due to RA.

Yes I have various health problems, but I haven’t experienced a noticeable decline in my all round physical health over the last few months. My daughter even thought I’d put on weight recently. My appetite hasn’t lessened.

Then there’s the severely mentally ill prone to anxiety(health and social) and paranoia ‘me’. The one that has read so many articles as to how those with SMI get inferior treatment of their physical health problems. That they’ve deliberately kept the truth from me.

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Does it still need to be confirmed if you have a tumor?

I hope your daughter can support you through these trying times.

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I truly think if they suspected cancer, you’d have known a while ago. I’m thinking you’re ok and it’s benign

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I don’t blame you for being worried. I’m not the bravest either. How far away is the appointment?

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The tumour is confirmed. They knew about it several months ago, but hadn’t told me.

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Is it medical malpractice?

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21st Nov. Listed as routine appointment.

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8

Ok. That’s good news. It’s probably nothing to worry about then. Still, they could have told you about it sooner.

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I don’t think so. Or at least the intellectual/rational me doesn’t think it qualifies as such.

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Is there any treatment needed?

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Take care of yourself @firemonkey

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All I know is that

the polyp sample could not be retrieved, therefore complete excision has not been confirmed

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Can you call them? I think you have questions that can’t wait.

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I could but I’m not great when it comes to talking on the phone.

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If you can, then do it. Otherwise you’ll be stressed out for weeks.

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Can you ask your daughter to call?

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Appointment in 12 days time.

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I’ll readily admit that like the vast majority of people I know next to nothing about medical ethics.However the fairly well educated layman in me says that it would be wrong(liable to being sued for it) to keep me ill informed if there really was a major health problem.

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I don’t understand much to do with medical stuff

Just hope that they can resolve the issue

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I’m so sorry for all that…hope they find out what’s going on soon and that you stay healthy.

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