It just doesn’t get better. It always finds a way to make my lows lower. Its a nightmare ill never wake up from. My friends keep trying to keep me alive which is just cruel and selfish at this point. They don’t even know what i have to go through every day.
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I’m sorry that you’re having a hard time, and that the illness doesn’t seem to get any better. I remember when I was first diagnosed I felt absolutely hopeless. the medicine wasn’t working and I was barely functioning. I couldn’t ever imagine at that point that the illness would get any better, but it did and I hope it will for you too. Have you talked to a doctor about this? maybe a change of medicine will help
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Kazuma, hang on. You were fine just a few months ago. Please take deep breaths, count to ten, and remember that.
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I relate.
Ive been 5 months out of hospital feel helpless and hopeless … been sedated everyday … dont really talk … no energy … everyone says its gonna be alright keep going … defeated is the word I use absolutely done cant do it no more.
Giving up sugar and taking b vitamins can help a lot
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I know the feeling well. You have a decent life and problems are just that, they go away or can be dealt with. Then there is sz and sza. Which you can fight all you want but it is like kicking and screaming in the wind…the wind just does not care.
I want to say please hold on, and do not lose hope, my friend. The illness can make us fragile, and I know for a fact that what you are saying is relating to a lot of people. But you cannot and must not give up. It’s human to not feel good about it when you feel so low. It’s difficult to get enjoyment out of things that you liked to do, and it’s a road with no directions where you have to find yourself again. The one thing in all this horror is hope. I’m not a very religious person but hope keeps me on my feet. I hope that medication will one day improve; I hope gene therapy will make a breakthrough some day not just for myself but everyone.
Take good care of yourself every day and make small steps towards recovery. Put yourself first and do not do things you do not want to do. Try everything in your power to make it so that you can live with it. Stay strong and remember we are all here for each other so you are not alone!
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