I wake up in the morning and just feel drained. All I want to do is sleep all day. I don’t get hungry. Usually I only leave bed to go to the bathroom. I am so sleepy during the day I can’t even really do fun activities I like either because I can’t focus on them because of the intensity of the sleepiness. I really think the drowsy issue I have is one of the worst hindrances to my function. I am really, really hoping the sleep doctor I see tomorrow will prescribe me a stimulant even though my sleep test came back normal and I wasn’t able to retake it due to insurance reasons.
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Could may well be the effect of your medication. Have you checked the side effect leaflets?
No this issue started when I was 15, well before I started meds, and has gotten progressively more severe since then. Meds seem to make no difference in my energy level whether on or off them.
I’ve gotten numerous bloodwork tests done all of which come back normal. I’ve been trying to find a reason or solution for years now and it’s impossible. I give up. I just want a stimulant so I don’t have to drink a ton of energy drinks just to function, I’ll end up giving myself diabetes that way.
Are you sure it is not depression?
I have no energy whether or not I am depressed. When I was in Disney world with my friends recently I was super happy and loving all of it, but I was falling asleep constantly, even on rides, despite getting ample sleep the night before. They joke I am sleeping beauty.
Has CFS been considered ?
Yeah. That or narcolepsy. My sleep results don’t qualify me for either of those but the doctor said I most likely had narcolepsy actually. The issue is whether he will be allowed to diagnose and prescribe me without those sleep results.
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