I find it very difficult to live with this disease

I was treated after my first psychosis and finally got a real sense of reality again. Only it seems that certain symptoms do not disappear. It is very frustrating. So bad that I think of suicide.

I do not know if I can still live with this terrible disease. I find it so bad that I am struck by this. It makes me completely broken.

I try to think positively and look forward. Do the right things. But it is simply annoying to be constantly confronted with psychosis. I just do not know how to live with this.

I can no longer live the life that I ever did. My functioning has deteriorated severely. I continue to keep symptoms whatever I do. That makes me despondent.

I prefer to crawl under a stone and never get away from it. I’m just done with it.

4 Likes

Dont give up…!!

2 Likes

It took me a long time to find the right meds, many many years. And even after finding the right meds it took me just as long to find the right dose. I’m still working on that, actually.

But things get better. It’s a slow, bumpy, rough, road, but keep going forward.

5 Likes

If several antipsychotics have NOT worked, try asking about clozapine. 600mg clozapine works better for me than ANYTHING before (600mg is typically the max dose)

Add in 300mg extended release litihium (my doctor has me at 600mg ER, says that for modern psychiatry that’s the maximum)

Here’s what I’m taking:

Morning


300mg extended-release lithium
Descovy 1x
50mg Tivicay
1g valacyclovir

Night


300mg extended-release lithium
600mg clozapine
120mg propranolol
500mg metformin
15mg mirtazapine

Vitamins


15mg Deplin 15mg
Centrum for Men 1x/day
1 scoop Tangy Tangerine 2.0

Myo-Inositol 8g 2x/day
600mg NAC 2x/day
3g L-Lysine 2x/day
200mg L-Theanine 2x/day

1 Like

Delusions of grandeur and ideas of reference are GONE. Fully.

I still have a bunch of invasive/involuntary/humiliating mental chatter…

But at least HALF of it is gone.

On the lithium, things that would have made me absolutely FULL OF RAGE no longer do! I feel Zen, almost :wink:

3 Likes

I feel feel similar to @Riot_TryIt in that small things will get to me if I’m feeling bad. Today every sound in my building is getting to me.

So I hear your frustration with clarity. :slight_smile:

1 Like

What a normal day like? Do you keep yourself busy ? I find that a schedule and less surprises and confusions really help me

You know it’s possible to recover from schizophrenia with the right dosage and the right support. It’s really rare but it’s my personal motivation.

[Here some links (all in french sorry but I couldn’t find in english; if you got some trouble translating, I can help]
-this link is from a well-known psychology magazine in France

-this is an extract from a tv show presented by doctors also well known


]

I understand that some people are recovering from psychosis / schizophrenia. But unfortunately that money is not for me. My feeling is not good. I continue to suffer from symptoms. I know that I have to learn to live with it. But it is difficult because I once functioned normally. And everything is broken now. I have to live with 40% of what is left of me.

Parle vu francais ?

1 Like

:slight_smile: oui ! 1515155

1 Like

Ahhhhhh!! Bonjour je m’appelle Jessica

1 Like

Surely you can benefit from free help. I’m sure there are some way, some allowance where you live, some family members or friends who could help out…Just don’t give up !

1 Like

Enchantée :slight_smile: je m’appelle Nadia. D’où viens-tu?

1 Like

Je viens de Florida … USA… My mémère and Pepere Canada long time ago !

2 Likes

Cool! Moi je suis Française (Haute Garonne). J’adore les Etats Unis :slight_smile: j’y suis allée récemment (DC & NYC) parce que ma soeur travaille là bas.

1 Like

Its tough. The best way to cope is to take your meds and create a routine. A schedule will keep you busy, occupied and away from your thoughts.

You don’t like France or French ? And your sister lives here but you visited DC & NY?

I’m Not that good at French … but I can wing it when needed lol

:slight_smile: I’m french so i can’t not to love France or french…:slight_smile: Just said that I love the USA. My sister lives in DC now so I went there to visit not so long ago. And it was amazing (food (of course ) and the people).

I think a lot of us can identify with that “wanting to crawl under a stone” feeling. That was what I did for about six years, figuratively speaking. I lived in a single room over run with cock roaches, and I laid in bed about 12 - 20 hours a day. The first thing I did when I woke up in the morning was drink a whole pot of coffee and take 40 mini thins - i.e. ephedrine. It didn’t speed me up. Now I’m living in an assisted living center for the mentally ill, and I feel better, even if I am not any more functional. These problems can have a way of working themselves out. Maybe you can get on a good med. and go to a group home. It beats wasting away on your own.

1 Like