I’ve been on this stuff five years and I’ve never had another psychosis since I started them. Of course this means it’s working but I don’t want to be on these medss particularly if I don’t need to be on them and this diagnosis is wrong.
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I sometimes feel like that, too. The side effects really mess me up. No pleasure in sex, getting fat around the belly, can’t concentrate very well, feeling tired… sometimes I’d rather just go off the pills and risk the voices and agitation coming back, at least I felt more ALIVE! But I don’t want my husband to be hurt by my illness coming back so I am just plodding along on my pills day by boring uneventful day…
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@anon80629714 hear ya lound and clear man, but being on meds, if you are sz is the best treatment option. If you don’t I think it’s like 80% remission back to psychotic episodes.
Please watch this video as it helped me understand more about sz and their alarming statistics…
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@anon80629714 be very careful if you decide to go off of your meds - I would do it with your doctors guidance.
Make sure you have a backup plan in place
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I’ve tried to do that twice with Drs guidance and i ended up with mood issues I wish they treated that without antipsychotics But other meds b
My psychiatrist is basically treating my mania with an antipsychotic and my depression with Lamictal, a mood stabilizer - but now she wants to add another mood stabilizer for my mania and mixed episodes
I have the same problem as you have @anon80629714. It has been at least 2 years since I have had psychosis. Part of me believes I don’t have schizophrenia. I do have negative symptoms though and that makes me think maybe I have residual schizophrenia. I don’t know what to believe anymore on this…my pdoc thinks I still have schizophrenia and wants me to keep taking the antipsychotic medication but sometimes I think that I don’t need them anymore.
Usually its when the meds are working well and you feel normal again that the thoughts begin to susrface that you are no longer SZ and then of course you go off the meds and the psychotic episodes begin again. It can become a vicious cycle or game you play with yourself about going on and off meds and if you are sick or not. I suggest that if the meds are working for you then to stick with them for stability.
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I halved my dose about four months ago - with the intention of tapering off - now I am psychotic again and worried I might end up losing my job. All the psychosis from before is back, and I have no choice to ignore it anymore, as it’s getting worse.
I came off meds 2 weeks ago as I couldn’t tolerate them anymore. I tapered off of abilify. I’m sure the fun won’t start for a few months. I had no choice as the side effects were torture. I’m placing a lot of faith in fish oil, vegepa to be exact. I’m getting a lot of headaches from withdrawal. This is my current solution to a no win situation.
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The reason why you haven’t had psychosis on them is because they reduce and eliminate symptoms.
I’ll say it a thousand times if I have to, antipsychotics do NOT cure schizophrenia. You can be on meds for 20, 30, 50 years, not have a single episode and you are still schizophrenic because once you drop meds your symptoms will come back.
Think of it this way. You have the flu and are too ill to get out of bed but you need to get work done so you take a lot of ibuprofen or something. It makes you feel like you’re totally fine, so by the next day you drop it and halfway through work you pass out because you’re still really sick. It’s like that.
Some people’s schizophrenia goes into remission after many years but it’s not really something that just goes away. If you are unhappy with your medication talk to your pdoc about lowering your dosage to see how you manage first. Whatever you do do NOT drop cold turkey-for people with sz who straight up drop meds, there’s an over 70% chance of relapse, usually triggered by the stress of withdrawal symptoms…
I’m just trying to give you the facts here.
People are psychotic for awhile. They get put on meds. They feel better and they figure they don’t need to be on meds anymore because they feel so good. It’s common.
Going off meds is also one of the top causes of a relapse.
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Sooo, I hear voices and see things though glass (never in the same room as me, I think the worst one of those yet is I thought a cars braking lights were on so i waited a minute in a store parking lot. Luckily my friend was with me and like, what are you doin man 
but I’ve been able to discern the voices from reality, that hasnt been an issue cause if I think for a second it’s like, it doesn’t make sense how clear it is when there’s noise on like music, but it usually feels like someone talking in my ear. Occasionally I will hear something at the door see what might be people (those peep hole things make it pretty obvious if they are real of not, they move so slowly) but I open the door and nothing is there. It’s still uncomfortable but it doesn’t make anyone’s life more difficult other than my own and I’ve have acute chronic pain my whole life (hard to breath even cause it constantly felt like 50 lbs of weight was crushing my chest all day everyday. I thought that was just what depression felt like cause when I was older and noticed it as a problem that was much more likely. Now it makes much more sense why I am so sensative to serotonin reactions) but my dopamine and glutamate had always been low, like I didn’t feel things as intensely as other people. I would get sliced by glass and on notice cause it felt like there was water on my leg XD sorry, rambling…ms, chronic pain (likely caused by ms), ocd, social and general anxiety (likely caused by the ocd lol), and MDD (severe), and adult ADD (I mentioned the low dopamine and glutamate before so there’s that) but it doesn’t make sense cause the working theory atm is that it’s cause by your body producing too much of those things. I’m sorry this is kind of a rant, I only just yesterday accepted that I have it…
Hello, I just don’t know how to start all this. I asume that everybody here have this situation at least once.
Years ago i have been diagnosed with paranoid schizophrenia, this might be right but i don’t care. I used to be on zyprexa and i just felt my self like crap. When i was without meds i used to feel things and know things, i used to have motivation to get up from the bed and do something. Now i simply don’t care about nothing. The days just pass on by and every day is the same day, everything i do is the same thing. I’m just so ambivalent and flatern. I almost don’t feel no anger neighter joy. I laught some times but it just doesn’t comes from my heart and soul. I’m prescribed 25 days clopixol depot injection. I all the time heard some strange noise in my head like a junky radio. My head is empty, can’t hear even my inner voice any more. I just get up from the bed i drink some coffe, go to the toilet and then i go to work, i finish work one way or another and i go home, i go to bed, and tomorow the same day. And the next day, and the next day, and the next day. And like this forever and ever till the end of time. But the people who treath me with there meds are saying that they care about me and, I’m fine now. But i don’t feel fine, I almost don’t feel nothing any more. Just flattern. And i don’t want any more injections any more. If i have to choose between this and the schizophrenia, i choose the schizophrenia. Well i had some hard times back in there, I took of knife for my mother, and sometimes had bad dreams about haveing sex with her. I just don’t know what is so wrong with me. Am I haveing an Oedipus complex? I’m 32 years and I have beautiful girl and 1 kid. The sex and relationship is fine, but I just sometimes ejaculate while i’m sleeping with no reason.
In some sort of summary i just don’t want anymore injections anymore and i want my schizophrenia back if it has to be. I can’t do sport anymore. My muscules are weak. And I had beautifull athletic body before now i just try something but no result. Please tell me what to do ?
Meds keep us outside of hospitals
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I don’t blame you for feeling that way. If a new drug without the side effect profile you don’t like comes along be the first in line to take it. Otherwise if you have something from the days when the illness was going on before you took the medicine that was very negative try to use it to remember why you are taking the meds. When you discontinue you will probably become that way again.
Thank you for your reply bro. I don’t know, I’m open for a new drug, this meds that I’m taking now simply drops me a lot. Sometimes I’m just so drowsy. The zyprexa made me 2 weak. Can’t work. The most important my be that I might be depresed a bit because of the withdtawl. I’m off of that olanzepine. Just simply don’t know what alternatives I have. The clopixol injection compleatly removes all the mania and paranoid thoughts. Sometimes I just know that the people think too little about anything, so it is not possible to think about me. This is how I fight the paranoid thoughts, but this way i just lost my sex drive. But at same time the injection makes my brain flattern 
Anyway I appritiate your reply, thanks for not judging me. How are you doing? Any problems. Share here I’m willing to listen
I don’t want to take antipsychotics anymore either but I’m terrified of the alternative so I’m staying on them as long as I live.
Yikes! This is a super old thread from 2015.