Im really struggling today. How do you carry on with life when negatives literally make life unbearable. You cant have relationships or bonds with people. There is no life with those symptoms. Ive looked for treatments but it seems they are untreatable and never get better. I wanted hope that its worth fighting and i can get better but theres nothing out there. All i keep thinking is ways to end my life
Do you smoke or vape? I found giving up nicotine improved my negative symptoms a bit.
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Therapy. It builds on the meds. The symptoms may not get better, but you can learn to cope with them more effectively.
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I used to have unbearable negatives.
For 3 years I felt life passing me by entirely.
I watched the world through the glass of my bedroom window and secretly wished to die.
But negs started lessening their grip after my second episode.
During my 3rd and most recent episode, I had a long brawl with voices and delusions (by long I mean weeks; by brawl I mean resisting them and not acting on them despite being unmedicated) and I ended up exhausted and still sick. Upon resuming treatment, my negatives slowly and steadily improved.
Truth is, nobody knows jack about negative symptoms, me included. All I know is, I used to suffer with them and now I mostly don’t.
Don’t lose hope.
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No i dont smoke or vape.
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Ive tried for years to push myself and it helps motivation but how do i live with the fact i cant have relationships and i cant feel pleasure in anything i do. Each time i talk i dont make sense and my personality is as good as a goldfish. Id love to know i can work towards getting better or more personality but i cant find anyone who has got better from them symptoms. Theres no point living my life
Thanks
I want to believe you that they went away but i just think your trying to give me false hope. I dont mean to be rude. All i hear is they get worse with age. The fda hasnt approved anything. People who have had sz for decades have tried for years to get better but never do.
Alogia and cogs are my worst symptoms but no treatment means the end of my life.
You either decide you’re going to do something about it or make peace with not doing anything about it and not getting what you want. Those are your choices. Only you can make them.
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I am not trying to mislead you.
It’s only a short account of what happened in my case.
I should also mention that 2nd and 3rd episodes occurred after I messed with my medication, which is not something I encourage you to do. It’s very risky and I’ve got zero proof that relapsing has helped me get rid of negatives.
Definitely want to keep fighting the symptoms but whats the point if nothing can be done. You have tried for decades to improve negatives but you say there constant and never go away. You have tried everything and put a lot of effort it. Your cogs improved but not negatives
Did you have alogia where you had no thoughts?
Anhedonia where you dont feel pleasure and not from depression?
And all this improved for you?
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SOMETHING CAN BE DONE BUT YOU HAVE TO BE THE ONE TO DO IT.
Recovery doesn’t just fall out of the sky and bonk you on the head. You have to chase it for dear life and hang on like a muthafxxxer when you grab a piece of it. Or you can spend the rest of your life complaining and die miserable.
Not answering any more of your questions as I’m busy and am not spending all the time repeating myself.
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Yes, alogia, anhedonia and avolition. The full package.
If you don’t believe, check out my old posts from 2015-2016. I haven’t changed my username.
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Sorry ozy, i just get really down about it and need reassurance. Thanks for always taking the time to reply. Sorry to of upset you
I have been unable to find a way to connect with other people in the local community
Tried all sorts of online solutions but they go nowhere
Putting myself on the back foot also with connections with others has had disastrous results in the past and I think there is a lot to lose if I enter into a that kind of abuse again
Some times I think being detached is a sort of defence that is effective but has it’s problems
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Are you now able to live a normal and meaningful life?
Do tou have any tips on how to improve
Meaningful is good, but normal is boring. If you have to work your arse off for something then choose for nothing less than exceptional.
I never said I was cured.
My negatives and cognitives have indeed improved to the point where I no longer dwell on them. My positives are managed with abilify.
I am able to work, probably full time but I opted for part time in order to play it safe.
I can read books, watch movies, have casual conversations with friends, enjoy food etc.
I do have social anxiety and low libido.
When you were at your worst. Did you find it hard to take information in and get your thoughts out? These are what i struggle with the most alongside alogia where im very mute. Did all this improve for you?
So many people say they never get better
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Alogia isn’t completely gone. And I express myself much more easily in writing than verbally. But it’s 80% cured as compared to 6 years ago.
I made an effort to talk and write more. Even when it felt like I had nothing to say, I still pushed myself.
Voices had a play in it too, although not intentionally. They pushed me beyond several breaking points with their disdainful remarks, until I started cussing and talking sh1t. Which was so unlike the previous me. After that, somehow, words I didn’t know I had in me started flowing.