Dr appointment - spoke of clozapine again

Had my dr appointment.

She spoke of low dose clozapine again. I’d be willing to try it a 2nd time and stay at a lower dose and then not get lots of side effects and have to stop like last time.

Would clozapine be a good thing to try (retry) at this point? Has anyone here really been helped by clozapine? Or not? What is considered a low dose? Can you take another AP pill with clozapine (like aripiprazole) or will that be unnecessary?

I think this has to be my next move. I will probably call my dr tomorrow.

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Years back, they told me it was the “gold standard” for schizoaffective disorder. Some say it works when nothing else does.

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Thanks @Jayster

I forgot that I too heard that they say it works when nothing else has. Thank you. That helps me.

dear Plady when I was very young I got put on 600 mg Clozapine because I was fluid psychotic and Guess what. After 6 week the entire psychosis went a way but I had all the well known side effects so I quit.

For me clozapine works no better than haloperidol except clozapine gave me tons of side effects and haloperidol gives me next to none. I couldn’t be paid to take clozapine again.

I’m on 200 mg clozapine, originally I was experiencing high hunger, wanting to sleep all the time, and salivation…but it’s kept me out of the hospital for over 6 months now whereas prior to taking it I was in the hospital almost every month. It’s helped me like nothing else. Now my doctor added Vraylar, 1.5 mg, and I’m sleeping a lot less (like going from 14 hours a day to 6-7).

I know folks can tolerate certain meds but clozapine is still bad. If you keep passing out might want to stop. I was scared of clozapine. I hope it wo out for y’all.

Clozapine is good

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I am only on 300mg a day, but it has calmed me greatly to where I was before…

Hoping I might be able to ditch some anxiety meds as a result

The first time I did not give it much of a chance, but it’s pretty good for me I think

Still taking Olanzapine 5mg along side it, but I think that’s being stopped

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Do any of you guys suffer from constipation issues due to clozapine?

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Welcome to community!
Im on 125 mgs, so far no constipation…
I had it when I was younger…

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Hello.

I am now on 300 mg of Clozaril/pine.

It’s definitely not enough yet. BUT it’s working a bit.

Unfortunately, I have bad side effects of weight gain and tachycardia and sleepiness.

So what do I do? I have no idea… My pdoc is out of town for a few weeks. I don’t know if going up higher in dose will help erase those voices and monsters in my head completely, or if I should just stick where I am, and learn how to fight back against them, and do things anyway.

It’s really hard.

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Hey @Pandy, it takes time for plasma concentration reaches maximum.
Don’t give up…
You can ask for small doses of haldol

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Y’all are strong when it comes to clozapine. I like that. I couldn’t go past one week.

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Welcome to the forum. Yes I suffer from that too. :dolphin::dolphin::dolphin: