Does anyone here consider themselves an expert on schizophrenia?

There is a lot I don’t know, but there is a lot science doesn’t know either. We all know more about it than 99% of the population.

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No one is an expert not even psychiatrists, they ignore your negative symptoms bcz they know nothing about them and have no treatment for them!

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@aziz i have created a topic which disease, can u check that out and comment there about what u think

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Can you link it? I cant find it.

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one sec, lemme see if i can link it

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here it is

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Im not a expert but through out the years i learn more about my illness

I’m pretty good at managing mine, but I defer to my doctors as the real experts. I just give them the feedback they need on what has and hasn’t worked to help them fine-tune decisions.

I’m not an expert and think learning about schizophrenia will never stop.
I do see certain markers, or things that appear in everyone’s story.

No I don’t although I used to think that. Then I learned over time that even the doctors and researchers I used to quote didn’t really know what it was. So obviously I must not either.

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Im an expert AT schizophrenia you know I can go off meds and talk nonsense and go all withdrawn and think im the centre of the universe and people are trying to kill me and laugh at nothing and talk to myself and have a flat affect and think i have a great theory and over-intellectualize it but nobody knows what im talking about and not eat or bathe regularly and lose almost all possible weight from constant movement… A real expert

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I only really am an expert in the sense i have my own “wierd” coping stratagies for it - but somehow i dont think my skills personal to me, would suit to help another person at times.

No. I feel like I know a bit about it, but I only have lived experience. Maybe its just a poor choice of words but its not the same as actual expertise and clinical knowledge.

I’ve seen every TED talk, SBSK interview, and independent documentary about it on YouTube, some multiple times.

I don’t think that makes me an expert, but it is what it is.

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I’m not an expert but I’ve learned a lot in the last year or so since I’ve been actively trying to learn.

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Nope. But I know a few tricks.

I’m an expert in my own schizophrenia. Been living with schizophrenia 24/7 for 10 years. Doctors might know me for a few weeks at 5 minute ‘intervals’ and just use their knowledge and training to help me and others like me but I think it would take a lifetime and magic money (infinite money) to help me. I would rather just take the meds THAT WORK and maybe accept what I got and my condition. Maybe hope there is a cure some day or some revolutionary treatment or aliens come down from the sky and cure us all…ya right…

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When I was diagnosed with schizoaffective for the first time years ago, I did a lot of in depth reading and research on my disorder.
I also know a lot about bipolar disorder.

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İ think i developed some insight about paranoias since i m struggle for them nearly 20 years.i can feel which ideas are healthy which ones are not.

I did a lot of reading of scientific papers related to Schizophrenia and different treatment strategies

I then used to tell the Doctors about what I learnt and suggest treatment options. Some Dr’s thought I was crazy, and they maintained that they are the experts. Other Dr’s were impressed that I’d done my research