I’ve decided to try to join a trial for a study conducted by UC San Francisco. It’s not meds, it’s a computer based support system. I’m really nervous. My intake is at noon. It will go three hours. That’s the longest diagnostic interview I’ve ever done. Usually they last under two hours. They must be very thorough. Then I’m nervous about the trial itself. Will I get overwhelmed with all the extra therapy? Will I fail at learning the new technology (ipad) Will I be a good participant? Anyway wish me luck.
12 Likes
I’m in that study!
3 Likes
Best of luck ! !
2 Likes
Is it hard? 1515
Good luck @Leaf
1 Like
I haven’t started yet. Just the two initial interviews. But they paid me my first installments! We can’t talk about the study once it starts, but I look forward to maybe seeing you!
3 Likes
wouldn’t it be weird if we wound up on the same team? Did you get your Ipad yet? Or you probably don’t need one?
1 Like
I already have one.
1 Like
I am supposed to do that too but I haven’t scheduled it yet. That sounds too long for me to pay attention.
2 Likes
I’m doing it now, it is long…
Let me know how it goes.
1 Like
well she confirmed my diagnoses of sza and said she will pass the info on to the scientist in charge of the trial. I might have to wait awhile to start because of my current meds change though. We shall see. It was a little hard to answer all those questions, but it’s basically like doing a mental health intake that you would do if you were going to a new provider (on steroids) They allowed me to do mine over the phone because I don’t have a camera on my computer to do a video call. The gal was nice.
Okay. I signed up for Saturday but that’s a lot of time to commit for an interview. I don’t know if my wife will leave me alone without watching the dogs for that long. We will see.
I gave them access to my medical records and my doctors phone number. You would think that would be enough.
1 Like
I know right? But I guess it can be a fine line between sz and other psychotic disorders and they want to make sure our docs have it right. Believe it or not I cancelled by first interview because I was freaking out that my doctor’s had it wrong and I might not be sza after all. But I actually felt a sense of relief in a way that she confirmed the diagnosis. That sounds dumb now that i’m saying it “out loud” but it’s true I like having a fourth opinion from a university person. I don’t know why but sometimes I feel like I’m not as sick as other people so I feel like they got the diagnosis wrong. But like the gal said it’s kinda like a spectrum, some are worse than others.
1 Like
I did the interview today but she didn’t say she confirmed my diagnosis. She said I would hear something back in 24 hours or so. I got schizophrenia at 38 so that’s not very typical.
1 Like
was it ariel? That’s who I chose. It may be different people have a different style. You’ll find out soon enough. I found out I am ready to start the trial and they have mailed the ipad out to me, I should get it next week. I also got my payment for the diagnostic interview. I had forgotten that this is a paid study. It was just a $20 Amazon gift card. I bought myself a cute pair of slippers. Anyway I hope it works out for you too because it seems like an interesting dealio.
1 Like
Good luck with your trial. Sounds very interesting.
1 Like
I interviewed with Lyndsey I still haven’t heard back from them but I guess I will by the end of the weekend. I already have an iPad so we did a video conference and I was done in less than 2 hours so I was pleased. My wife listened in and kept chiming in though so I don’t think that helped at all.
1 Like
Good luck @Leaf.
Have any of you heard of the hearing voices study. I think the hearing voices movement does it. I had to install an app on my phone and answer questions three times a day. They paid me alittle over a hundred dollars to complete the study.
1 Like
Good luck! I’m betting that this experiment will be a positive experience.
1 Like