Diagnosed for the Diagnosed

One BIG bingo here.

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I feel I do’nt belong here anymore, because I am afraid to say this…

I’m not a schizo…

I’m a squirrel.:pig:

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i’m a hamster :hamster:…
lets start our own club on the forum…
we will call it ’ the house of nutters :chestnut: for little animals ’ ( cats :cat: and dogs :dog: included )
:mouse:…!?!
take care :alien:

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I’m in! Promise not to eat any of the smaller animals. :kissing_cat:

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Family, Friends, and Caregivers have their own forum. The site policy is also such that is preferred that those who are not Family, Friends, or Caregivers are discouraged from posting there. While there is a forum for Diagnosed, it’s pretty much open to anyone. There is a disparity between how the Family forum is moderated and how the Diagnosed area is moderated. I don’t feel it’s unreasonable to point this out.

Pixel.

As a family member I deeply appreciate the insights of people with the sz dx my family member has. Your life experiences and perspectives are helpful and important. They are particularly useful and valuable in the family section when people have questions and need to be reassured.

I came to the family member section and realized that I have much more in common with people with the dx **; note that I was diagnosed with sz in my early 20’s and the dx changed. My own anecdotal experience does agree that there are massive lived differences of experience among the psychotic spectrum dx since I have lived with a person with bipolar one and a person with sz and me. For example, I hallucinated for years, corpses all over the place, fires, rotting animals, weird warriors and those went away when I was treated for ptsd. My under or overlying psychotic depression is ongoing along with complex ptsd and dissociation. Does any of that matter? No. If sz people want other dx out of the diagnosed section, I’m out. I cried when I read this thread because I don’t want to leave, but if I don’t belong here either (no FB, no IRL friends to hang with more than once every couple months…), I don’t. The last thing I want to do is make anyone’s life who does have sz any more difficult or unpleasant.

With care and respect, and the personal request that people with the diagnoses please keep posting in the family members section. You perhaps have no idea how much your advice and comfort to family members means, so thank you if I don’t say it often enough (for example to Nick for every time you have given so much).

** At first I realized I should not open dx threads (and I also tried to find other forums; none fit), but there are so few family member threads and what is in ā€œdiagnosedā€ threads is often so helpful or funny or true or whatever that I was drawn in… I’m sorry for any invasiveness.

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A diagnosis is someone/s opinion. If someone is psychotic and mentally ill and doesn’t like their diagnosis just find a new doctor. It’s likely to change. I didn’t want schizophrenia, still don’t. It robbed me of my career and my dreams so I saw every doctor that would see me. As a result I’ve been diagnosed with:

  1. Adjustment Disorder
  2. Adjustment Disorder with Depressed Mood
  3. Delusional Disorder
  4. Paranoid Schizophrenia
  5. Schizophrenia Residual Type in Remission
  6. Dysthymic Disorder
  7. Anxiety Disorder NOS
  8. PTSD
  9. Atypical Paranoid Disorder
  10. Psychotic Disorder NOS
  11. Chronic Paranoid Schizophrenia
  12. Schizophrenia, NOS, Chronic
  13. Paranoid-type schizophrenia subchronic state with acute exacerbations

So if you want your diagnosis tweaked just get a new doctor. No telling which one of mine is ā€˜right’?

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Hey, I don’t agree with that. I’m diagnosed schizoaffectivre because I have both schizophrenia and a mood disorder. I think many people here have that diagnosis for the same reason. The addition of the mood disorder doesn’t take away the schizophrenia.

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I agree with you. I’m sorry if I phrased it in a way that suggested I didn’t. I think dividing it up isn’t a very practical idea, personally. That’s all I meant to say.

And then there’s threads like this one:

http://forum.schizophrenia.com/t/getting-ready-to-leave-paranoid-schizophrenic-husband-of-20-years/42050/

Does anyone think it would have been locked if there were no Diagnosed in there? This is an example of much-needed support by a family member being short-circuited by the wrong group getting involved in the discussion.

Pixel.

We should really just all stop taking it so seriously when Malvok continually makes these posts. He’s just doing the Internet equivalent of telling those damn kids to turn down their rap music. Some people just can’t handle change.

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I privately suggested the same thing to @SzAdmin well over an hour before @Malvok posted, so this can’t all be put on him. There are a number of us who feel this way, but only a few are comfortable or secure enough in themselves to deal with confrontation.

Pixel.

This thread has made me feel guilty whenever i read or post in a thread that isnt about mental illness

I’m not asking anyone who is here to leave. Just asking for a small corner for those of us who do have an SZ/SZA label to have our own discussions. I don’t think creating an extra forum just for our small cohort will cause the world to stop spinning.

Pixel.

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From now on im only gonna make topics about laying eggs and the world without color, the real estate agents of destruction. Ill keep these in the unusual beliefs section

I just thinks it’s ridiculous to segregate people based on an arbitrary line that has no actual meaning to anyone, even competent psychiatrists.

Aren’t we always telling new posters to treat the symptoms, not the labels? Don’t we always tell them that diagnoses change, and that the important thing is to develop coping skills that are universally effective for all psychotic disorders?

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Totally legit to ask for it.
But, don’t you think that the very Principe of homogeneity in whatever shape just don’t fit such medium as it is Internet?

And how is one supposed to get into the small group of ā€˜us’, or to improve from ā€˜the rest’ to ā€˜us’? Will the posters be requested to show their hospital records at the gate, as our fellow sleepoptimistic once suggested?

It’s pretty simple, if you’ve ever had a diagnosis of schizophrenia or schizo-affective then you’re good to go. If you haven’t, then stay out of the Diagnosed section. Can liars be restricted from posting? No, but that’s the case with anything on the Internet.

The whole idea that we should ignore any diagnosis is silly. This is schizophrenia.com not genericmentalhealthsymptoms.com. We deal with very specific issues by being labeled as schizophrenics. Isn’t that the whole reason we came here?

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At the end of the day there is no definitive way of knowing whether a person who comes here is sz or sz-a. People trust that others are being truthful in claiming the diagnosis but as for proof positive. …

Speaking personally I have always been clear about my psychiatric history ie officially sz then sz-a then PD NOS then currently paranoid PD. Also noted at various points according to psychiatric records- sz with personality disorder,sz with disorder of gender identity, bipolar, dependent with possible histrionic
traits,deeply dependent narcissistic (those last two coming when relations between me and the psychiatric team had all but broken down and very much reflecting subjective biases arising from that situation.)
Many other than me are also open in explaining they are not sz or sz-a but can we really say that all are so open and above board? Other than scanning and posting psychiatric records including current diagnosis to sz admin there is only trust to go by.