I just feel upset about how my diagnosis is changing all the time. I mean i know i moved cities but i feel like people dont know what they are doing and are just slapping a label on me. I just want closure. I definitly know i have complex ptsd but that doesnt account for other symptoms im having.
Pdoc says its ptsd with physcotic features but theres like no one on this forum with that diagnosis i think and i just feel so alone.
Rant over
Lots and lots of people here with psychosis. You and I both have similar delusions about parts of our bodies NOT being parts of our bodies, which … sucks. Please don’t doubt that you fit in here, okay? Keep coming back, keep posting.
Thanks @shutterbug. What are your delusions about your body parts if you dont mind me asking? I dont want to trigger you or anything but i just feel so alone and want to relate to someone. By the way what is your diagnosis?
I have cPTSD and sz. You’re not the only one. And i know there are others.
And thank you @shutterbug i really love this forum apart from that person who accused me of not being in hospital when i really am. We are like a big family that supports each other. All very well talking to the treatment team but they dont understand like we do.
Also, it can take a long time for a correct diagnosis. A lot of us went through the whole getting diagnosed with something different by everyone you see thing. The meds are what’s important, not the name.
Thank you for commenting. Its nice to know im not alone (sorry that you are experiencing this). I dont really understand why its cptsd instead of sz say do you?
I have an implanted cardiac pacemaker. This is actually the fourth one as I had my first one implanted when I was twelve. I kind of need it as I have almost no natural heart rhythm now. I have this constant belief that it was implanted in me by hostile aliens to control me. It’s a nanotech producing monitoring hub and I can feel it extending and withdrawing shoots and tendrils in my left shoulder and through my chest (tactile hallucinations). I tried to cut it out once, but the pain stopped me. Lots of scarring from that.
I’m treatment resistant so it took years to get insight about it and develop coping mechanisms. Now I automatically push the weird thoughts aside. It’s a legit medical device, there are no aliens, the crap I’m feeling is just my broken imagination leaking into the working parts of my head. I move past it and get on with my day.
Meds, therapy, CBT, and a decision to move past this @#$% and have a life again.
Doctors don’t like to give out a SZ diagnosis until a certain amount of time has elapsed. If you’re new to being treated, You’ll go through a whole bunch of labels of (usually) increasing severity until they settle on SZ. Not something to fixate on as the treatment for most the labels is pretty much identical, ok?
Hope this helps.
Wow that sounds so awful im sorry you experience this. I can relate to you about trying to remove the hands but it hurts too much. I just feel so tormented 
I don’t know your symptoms, you’ll have to ask your doctors. I have hallucinations that are likely due to the ptsd, but also some that my doctors believe are due to psychosis. But who really knows? I also have other positive symptoms that are not related to cptsd, which is why I have the sz diagnosis.
Diagnosis often changes with time. The important thing is medications and taking them. Everything else revolves around that.
Saying that. There are similarities. I can relate to a lot of what you describe…most of us have been there or similar. It’s how you react to it that is important. I didn’t have this website till after I was on the meds…you’ve a leg up on my experience…
Don’t worry bout the diagnosis …worry about being well.
Its just cause i have had scizifreniform diagnosis and sz diagnosis before. This has been going on for 2 and a half years now. Also i can see the prodromal stuff in my teens and the early warning signs. I think i put on a front like im algood because growing up my dad would get angry and violent if i was anything but happy.
I dont want to be labeled with sz (no offence) but looking at how long ive been physcotic for and some of the negative symptoms i just have this feeling that thats what i am. I dont want to admit it to myself its like defeat.
At the same time though i know that these are not my hands and i will remove them. (Not trying to worry anyone) . Plus the police use their aerials to insert things into my head like voices and read my mind and surveillance me. Im planning to get pliers and cut off all their aerials so they cant violate me anymore. Plus im going to break into the police station and get my hands back.
They dont deny having my hands either. Even one promised to give me them back. They didnt. They just took me back to hospital and left me hysterical.
Im seeing a judge to do with keeping me in hospital early september. If she or he doesnt get the police to give my hands back and stop violating my brain then i will have to do what i mentioned earlier. Sorry getting a bit wound up now. Might go ask the nurse for some prn.
Honey, the police don’t have your hands. Your own hands are attached at the ends of your wrists.
You’re not alone, princess.
diagnoses change depending on what doctors understand about your symptoms. my doctor is debating on whether I am schizoaffective bipolar or schizoaffective depressive. he cant decide.
at first I was borderline personality disorder with psychotic NOS then it got changed to schizophrenia and again to schizoaffective disorder.