What is the worst thing about your illness?

DX'd - Other
1

for me being judged as crazy and hearing the word “paralyzed” (which I’m not)

What’s about the illness that hurts you the most?

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2

The fact that it completely disables me and makes me a zombie. The fact that I can no longer enjoy my hobbies like I once used to :,(

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3

I’m sorry.
In time these kind of diseases get better and thus by reducing your meds dose by your doctor you could enjoy life again

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4

There’s a line from a song

“Missing out on life’s reward, of that you can be sure”

And that’s what I hate about it. There’s a lot to enjoy in life but it’s always just out of reach for me.

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5

Developing Anhedonia(lack of pleasure) as a negative symptoms(or caused by meds, who knows). Also, lack of motivation. I have no positives on meds so negatives are the worst thing now.

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6

@everhopeful ever heard of British philosopher Alan watts.

I credit him for finding a more present, meditative, content state of the mind…almost as much as I give credit to my meds.

Some might find it triggering I’m not sure. For me it’s really the opposite though. He usually sets me back into reality. When I’m struggling it helps in conjunction with my meds

He would help with what you’re saying here I think. Just YouTube his name if you feel like it

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7

I only have positive symptoms and no negative
But I don’t prefer otherwise
I can handle a liitle voices that mostly thought reading, but negative symptom don’t let you enjoy your life,
I’m sorry about that

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8

Thanks @Jonnybegood . I’ll keep him in mind.

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9

As mentioned before, the struggle for motivation. It’s a constant battle.

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10

Yea… Today I was in a group therapy… I talked about losing my mind and felt like ppl wanted to distance themselves from me. Sigh.

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11

I’m sorry about that
I hope you wellness

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12

Thanks @moshtaba2… You too…

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13

The worst thing about it for me is the complete and total unpredictability of it. Most of the time, I am symptom free. But every once in a while, usually always when I’m around people, I get a a really bad psychosis attack. It’s scary.

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14

yeah
Being in negative crowds is also triggering for me

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15

The worst thing about this is not people being nefarious, or insinuating negative things about me; but rather it is my self-esteem taking too much damage from my own stigma. My view on myself is what is the most damaging, negating any possible hope for future joy.

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16

When I get positives, it’s definitely delusions, then paranoia.

Else I find my poor concentration and memory very debilitating. Also lack of motivation and no social life is terrible for me. It takes me weeks or months, sometimes years to complete a simple task and most of the time it’s with help from someone else.

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17

Gosh, I’m so sorry @anon18305065 . Sounds like your negatives are really bad.

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18

Sorry about that
Wish you better health

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19

Yes negatives are troublesome. I mostly live a sedentary life. At least I go to the shop and take a short drive each day.

I really struggle with concentration. Can’t follow much of conversations. I don’t even watch tv cause it’s useless for me cause I can’t follow story lines or news bullitins.

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20

The paranoia. Never really shift it. Yeah the drugs get rid of vicky and her assorted crap. But usually paranoid and suspicous.

Unless of course ive had a skinfull of beer - then i couldnt give a monkeys - but that aint not way to live my life.

CBD Helps a hell of a lot. But at £40 for a 10ml bottle that lasts less than i week i cant keep buying it. Benzos are like gold dust too - and im lucky if i get 7 10 mg Valiums once a year lol.

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