What do I do?

I cant get ahold of my pdoc. The service I use isnt very good. Im already on the wait list for a new pdoc but they are a private practice and arent as nice as the non profit i use. If you miss more than two appointments at the private one they kick you out of their system…or they discriminated against me at least…the psychiatrists were much more higher than thou and talked down to me.

I think that I spent 5 days in the hospital as a reaction to Topamax. https://www.drugs.com/mtm/topiramate.html

It says dont just stop taking it and I dont know how to stop taking it…I asked to be on something for weight loss and I was put on it for weight loss. I also read it helps with addiction and headaches, so it would be really good to help with all my issues…

but I have had all their side effects, the hair loss, the dizzy spells, high fever …

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Topiramate

Generic name: topiramate [ toe-PYRE-a-mate ]
Brand names: Eprontia, Qudexy XR Sprinkle, Topamax, Topamax Sprinkle, Trokendi XR, Topiragen, Topiramate ER (Eqv-Qudexy XR)
Dosage forms: oral capsule (15 mg; 25 mg); oral capsule, extended release (100 mg; 150 mg; 200 mg; 25 mg; 50 mg); oral solution (25 mg/mL); oral tablet (100 mg; 200 mg; 25 mg; 50 mg)
Drug class: Carbonic anhydrase inhibitor anticonvulsants

Medically reviewed by Drugs.com on Feb 1, 2022. Written by Cerner Multum.

What is topiramate?

Topiramate is a seizure medicine, also called an anticonvulsant. Topiramate is used to treat certain types of seizures in adults and children who are at least 2 years old. Trokendi XR is for use in adults and children who are at least 6 years old.

Some brands of topiramate are also used to prevent migraine headaches in adults and teenagers who are at least 12 years old. These medicines will only prevent migraine headaches or reduce the number of attacks, but will not treat a headache that has already begun.

Topiramate may also be used for purposes not listed in this medication guide.

Warnings

Topiramate may cause vision problems that can be permanent if not treated quickly. Call your doctor right away if you have a sudden decrease in vision.

Topiramate can increase body temperature and decrease sweating, which may lead to life-threatening dehydration. Tell your doctor if you have decreased sweating, high fever, and hot dry skin.

Some people have thoughts about suicide while taking seizure medicine. Stay alert to changes in your mood or symptoms. Report any new or worsening symptoms to your doctor.

Before taking this medicine

You should not use topiramate if you are allergic to it. Do not take Trokendi XR within 6 hours before or 6 hours after drinking alcohol.

Tell your doctor if you are sick with diarrhea, or if you have ever had:

Topiramate can increase the level of acid in your blood (metabolic acidosis). This can weaken your bones, cause kidney stones, or cause growth problems in children or harm to an unborn baby. You may need blood tests to make sure you do not have metabolic acidosis, especially if you are pregnant.

Some people have thoughts about suicide while taking an anticonvulsant. Your doctor should check your progress at regular visits. Your family or other caregivers should also be alert to changes in your mood or symptoms.

Taking topiramate during pregnancy may increase the risk of cleft lip and/or cleft palate, a birth defect that can develop early in pregnancy even before you know you are pregnant. However, having a seizure during pregnancy could harm both the mother and the baby. Tell your doctor right away if you become pregnant.

If you take topiramate during pregnancy: The benefit of preventing seizures may outweigh any risks posed by topiramate. There may be other medications that are safer to use. Do not start or stop taking topiramate without your doctor’s advice.

If you are not pregnant or planning to become pregnant, use effective birth control to prevent pregnancy while taking topiramate.

Topiramate can make birth control pills less effective. Ask your doctor about other birth control options such as an injection, implant, skin patch, vaginal ring, condom, diaphragm, cervical cap, or contraceptive sponge.

It may not be safe to breastfeed a baby while you are using this medicine. Ask your doctor about any risks.

How should I take topiramate?

Follow all directions on your prescription label and read all medication guides or instruction sheets. Your doctor may occasionally change your dose. Use the medicine exactly as directed.

Topiramate can be taken with or without food.

Swallow the tablet whole and do not crush, chew, or break it. The Trokendi XR extended-release capsule must be swallowed whole. Do not break or open.

Measure liquid medicine with the supplied measuring device (not a kitchen spoon).

If you cannot swallow a Qudexy XR or Topamax Sprinkle Capsule whole, open it and sprinkle the medicine into a spoonful of applesauce or other soft food. Swallow the mixture right away without chewing. Do not save it for later use.

Carefully follow the swallowing instructions for your medicine.

Topiramate doses are sometimes based on weight in children. Your child’s dose needs may change if the child gains or loses weight.

Drink plenty of liquids while you are taking topiramate, to prevent kidney stones or an electrolyte imbalance.

You will need frequent medical tests. If you need surgery, tell the surgeon ahead of time that you are using topiramate. Any medical care provider who treats you should know that you take seizure medication.

Do not stop using topiramate suddenly, even if you feel fine. Stopping suddenly may cause increased seizures. Follow your doctor’s instructions about tapering your dose.

Call your doctor if your seizures get worse or you have them more often while taking topiramate.

Store at cool room temperature away from moisture, light, and high heat.

Detailed Topiramate dosage information

What happens if I miss a dose?

Take the medicine as soon as you can. Do not take two doses at one time. Skip a missed Topamax dose if your next dose is due in less than 6 hours. Call your doctor if you have missed more than one dose.

What happens if I overdose?

Seek emergency medical attention or call the Poison Help line at 1-800-222-1222. An overdose of topiramate can be fatal. Overdose can cause drowsiness, agitation, depression, double vision, thinking problems, problems with speech or coordination, fainting, and seizure (convulsions).

What should I avoid while taking topiramate?

Do not drink alcohol. Dangerous side effects or increased seizures may occur.

Avoid becoming overheated or dehydrated in hot weather. Topiramate can increase body temperature and decrease sweating, leading to life-threatening dehydration (especially in children).

Avoid the use of a ketogenic or “ketosis” diet (high in fat, low in carbohydrates) while you are taking topiramate.

Topiramate may cause blurred vision or impair your thinking or reactions. Avoid driving or operating machinery until you know how topiramate will affect you.

Also avoid activities that could be dangerous if you have an unexpected seizure, such as swimming or climbing in high places.

I already told my pdoc this week and all he suggested in out 6 min conversation was to take it at night instead of once in the morning and once in the evening. They say not to do anything without your doctors advice but he never tapers me off meds he just tells me to abruptly stop them anyways so what difference does it make if i taper down on my own?

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You’re a good patient. I rarely do what doctors tell me to do. I wouldn’t go off my Valium though, that’s deadly.

I’m frustrated with my pdoc too. She prescribed cogentin for my td. I looked it up it’s definitely the wrong med. i was so frustrated I lowered my abilify on my own

She just doesn’t listen to my concerns. And now I think she’s FOS too.

When a pdoc can’t help you and you must lower a med. and you voice your concerns and it’s in 1 of their ears out the other. It’s really frustrating.

It helps me with mine. Give it a try

Really?? It said there was a major interaction and can even cause glaucoma sometimes. my mom said it was the wrong med too. What do you attest to that hold on I’ll find the article. I’m glad it’s helping you and not hurting. I still have td even taking much less abilify so I need something. I heard about some other 2 meds for td. I was gonna ask next time.

@LilyoftheValley

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I stand corrected. I wonder why it helps me. So strange. I apologize for giving bad advice

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I’m interested if @Wave ever took cogentin for td because I think he said once he may have glaucoma.

It’s ok. Are you sure you have td and not some other movement disorder? I think a neurologist would be the best person to ask? Not a psychiatrist. My arm shakes from zoloft permanently too. My pdoc said it was a dystonia but he couldn’t say for sure.

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I guess I don’t know now. I’ll have to look into it

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It’s ■■■■■■ up what we have to deal with

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My mom was saying stupid stuff about my meds and my pdoc pissed me off too I got mad kicked a bag of cat litter it spilled all on the floor. This was last Friday. But then I got a job Saturday and life’s been good since. I now am on lower abilify but still facing td. I have follow up appointment in 1 week. So I’ll bring up the Td meds

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Good idea. But just a warning, the other TD drugs are very expensive. Try to get help from the manufacturer if you’re not on Medicaid or Medicare

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I’m on Medicare and Medicaid. Will it cover it

Yes, it should if you have Medicaid.

It’s my secondary but I guess Medicare is my primary. I have something called a drug plan for meds. It’s gone up from $3-4 per med. when I had Medicaid as my primary meds were free but now they’re about $4 typically

Yeah. TD meds will most likely have a copay

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Have you ever tried GoodRx they have coupons you can get it so cheap at stop n shop if insurance doesn’t cover it like I tried with viagra/cialis. So expensive but then GoodRx coupon at stop n shop I saved like $200. I’m not sure about all meds but certain ones maybe

No I never took cogentin @Jonnybegood

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