I meet a support worker and my nurse regularly. My nurse does my depot and I go walking with the support worker.
Things is I kinda feel like they are judging me when they come round the flat. They seem to be scrutinising everything like how clean it is etc.
What’s more I recently bought a lot of tech online and have a result have a load of empty boxes. Lying round until I can go to the dump. I feel like their thinking,
‘What’s he doing with all that money. He doesn’t even work’
In actually had one OT complain that I had a larger tv than him implying he was pissed off by amount of welfare.
The end result of all of this is I don’t want them coming round my flat. Being the subject of their scrutiny makes me really stressed.
I don’t want to discharge myself from the care services but I don’t want them in my flat either. Don’t know what to do.
Oh I am in the same boat as you with the negative symptoms. My house is a wreck! My husband does all the cleaning because I just can’t organize. It is super overwhelming for me.
Yeah I think I will just meet my support worker out for coffee.
Thing is they are pushing me to go to really crowded places but I honestly don’t want to leave the village. Has got to the stage that this is a deal breaker for me.
Is it really unusual for someone with sz to want to limit their social activities? I mean I really don’t want to go far from home at the moment. Surely they have other patients in the same boat?
The cmht makes out like all the clients are rocket scientists and debutant socialites. I think they tell me this to motivate myself but at this point in time it does the opposite. Their high expectations further entrench my beliefs that going out is too hard.
I actually have little current experience as I have not had a CPN(or what used to be the equivalent) or support worker for over 30 years.
For the first 8 or so years I had a community nurse who came round to my parent’s house, and also saw me in hospital, but that all stopped when I left hospital with my future wife to be.
Basically they disapproved of her so decided to give minimal help and support.
Not being seen as an acute/crisis case or a complicated case I’m not regarded as qualifying for a care plan or CPN etc.
I see them at the depot clinic every fortnight and the nurse practitioner every 6 months or so that’s it.
I guess I’m no different from any chronic, not acutely ill patient, living in the community.
So long as we take the medication or the jabs we are virtually forgotten about.
The only reason for anyone to chase me up seems to be if I’m a few hours or days later for my depot.
I have an enduring illness but whether it’s regarded as “severe” -hmmm?!
All I know is they are quick to chase me up even if I’m a little later than usual for my depot.
Maybe being on an antipsychotic depot isn’t enough to be seen as severely mentally ill.
Maybe they have any old mental patient on antipsychotics. “Mild anxiety? We’ve got some Clozapine for you.”
like the cinema