Yeah, I just spent 11 days in the hospital and got out today. My treatment team and I were trying to titrate down on the clozapine and just going from 200mg to 100mg caused me to become psychotic again, in just a couple of weeks. I quit eating and sleeping and was hearing “the doctors behind the bedroom wall” talking to each other about me.
We were trying to eventually go off the clozapine because of the cardiac issues, but we all agreed that that’s not going to work. I stabilized on 150mg but am still afraid of eating cuz I think I’ve been genetically modified…part of me understands that this is delusional but another part can’t overcome the fear. I AM eating some but have to supplement with Ensure to get enough calories. That’s kind of weird since I worked hard to lose weight and now I have to work hard to maintain my weight.
The hospital wasn’t too bad…I was on the closed ward, but that’s because the place was chock-full-of-nuts and I only wanted to deal with 3 other crazies and not 20 (I CHOSE to stay on the closed side). The food would’ve been great if I could’ve eaten, but I ate enough to get my labs back to almost normal. They wouldn’t let me leave until my BUN labs were above 4.
Anyway, I’ve got an appointment at the heart center on Tuesday, so maybe they’ll finally figure out what’s causing my tachycardia spells and QT-Prolongation. I see my outpatient pdoc tomorrow.
So… I’m glad to be home and have my dog back, I just wish all of this sza-related crap could be over and done…
I remember you said you were switching to vraylar. vraylar is much less effective than Clozapine. Maybe risperidone or olanzapine are better options, more effective than vraylar but less effective than Clozapine.
Hang in there @WhiteRaven . Sounds like it has been quite scary and a tough ordeal. Sharing what you are going through here is a good idea. All of us here are with you in your struggle. Don’t forget that. You’re not alone. You have brothers and sisters here. The best of everything to you.
