It's gotten so bad I'm scared

Well anna not going to lie… not going to lie… but that sucks. I been noticing that my sleep seems to be increasing. The only difference is that I don’t feel tired in the same way I felt in the past. The meds did something to me and now I just close my eyes and awake 8-10 hours later.

Odd, so it’s like losing consciousness/anesthesia more than sleep?

Something like that I don’t really feel tired in the same way as I used to before all of this. Also I’ve been meaning to ask if you are awake only part of the day how much time do you have? It is nice that you decide to spend it with us in a manner of speaking.

Could it possibly be narcolepsy?

I am awake and alert for probably 2 or 3 hours a day.

I can come on here pretty often though because when I’m trying not to fall asleep during my sleepy spells I go on my phone to try to stay awake as looking at screens helps keep you up.

Yes doctor said it sounds exactly like narcolepsy but couldn’t prescribe me bc my sleep study came back normal even though it was an unnatural study where I didn’t sleep my normal schedule and it didn’t measure any of my sleepiness spells. He says it is flawed and it is not uncommon for people with disorders to have it come back normal but due to tight regulation of meds used to treat sleep disorders he could not prescribe me anything due to the sleep study results despite all of this knowledge.

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Well I hope you can get better and stay awake for longer. You’ve posted thread similar to this and I feel like I give the same advice. I wonder if coffee really works or if it just works because I am addicted to coffee.

Coffee helps me a lot and if not for caffeine I would literally not be able to function. (It’s what allows me to stay awake for more than 2 hours a day) It’s basically how I am self medicating myself.

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As much ad I hate to say this, but, have you asked about stimulants at a low dose that won’t trigger psychosis?

Yes that is what I’m trying to be prescribed. I had been talking about modafinil which does not affect dopamine. I’ll discuss it when I see my new doctor at the end of next month.

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Sounds like a plan. I wish you the best of luck!

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