I had a consultant neurology appointment today. He didn’t even really let me say my corner before mentioning “maybe you should see a clinical psychologist”, I’m genuinely suffering and they always put it down to my mental illness, I won’t read the letter from him, I’ll get too upset. Mum backed my corner, I had a load of bloods done, having a tilt table test so it’s not all bad but I feel disheartened I thought he’d be better than that, he lied, he wasn’t honest, either that or he was incredibly lacking knowledge. I just want to cry, I can feel implant and microscopic everything creeping back.
I’m exhausted, I don’t want to do any more of this stuff, I just want to be heard and no schiz creeping in, and dominating the room. I don’t want to go to the gp for bloods incas he laughs at me and tells everyone I’m a liar.
I not a liar. :’( I just want honesty. I’m sick of this world perverTing everything everyone says or does. I need to go to bed. I’ll go in a bit.
Has anyone else had such difficulty? Getting treatment for physical ailments? I know rethink (mental illness charity in the uk) is doing a 20+ campaign so mental and physical health are treated equally, it has horror stories of people with schiz dying because of untreated physical illnesses, it needs to be done its just I’m always fining myself not listened to without being properly assessed etc,he should have done many more tests before doing the clinical psychologist route but we wouldn’t have got anywhere.
I’d like to hear your experiences and tips on how to get through this low as I can feel it crEeping into my bones.
I hope your day is letting you cope as best as is possible,
Take dare,
Meg,
It took over 3 years of asking my pdoc/doc to test my thyroid after I learned from my mom that every single person in her family is on thyroid medicine.
My pdoc kept ignoring that anything could be physically wrong, including genetic heart problems that forced my mom to get a pacemaker. My brother who is one year older than me has found out a couple years ago he also has this heart problem. When I mentioned this to pdoc, he said I wasn’t cost effective for treatment, meaning It wasn’t worth the cost to prolong my life.
I took an online quiz about low thyroid, and came up 98% low. I pronted this up and showed the pdoc. He ordered the blood test, and gosh!
What do you know? I was very low. I got thyroid med.
.
Matters not now, I was dropped from med insurance and now have no doc/meds. I ran out of my thyroid med in Sept, and it will cost $45 to see a doc + $100++for labs(no doc will refill the meds without labs) so it will be $145(++) to get a $10 med.
I just can’t do it.
If you want to be heard, you have to make the doc listen. Be persistant.
Sometimes you have to be your own doc, and look things up online, then take your findings to the doc and tell them this is what you think. Don’t let them brush you off. If you still can’t get what you need, change docs.
Don’t give up, if you feel bad now, it will only get worse, (in this case, your worrying and disatisfaction will drain your energy, making your physical state that much worse).
Yes… there have been times where my physical illness got lumped into my diagnosis and I’ve been ignored. The dangerous thing… I start to believe them and ignore my own physical health… which is what happened with this last bought of flu.
I’m sorry you’ve had that happen to you. It is disheartening when it happens… and it does rattle and just kills the confidence in a lot of the medical profession.
Is there a way to see a new doc and not tell them anything about your diagnosis? I understand after this last incident you’re probably not too keen on going back…
When it happens to me… I’m pretty fed up and done with doctors too… but eventually I do have to get the physical health checked out too…
This last time with flu… I didn’t even consider that I was physically ill… I really thought it was all mental. I was very certain that a doc would just up my meds and be done with it… the thought that I even had a physical thing going on didn’t cross my mind.
I hope you feel better and it know it’s hard… but keep up the fight for your health… your worth it.
Hugs to you Dante…
I wish I could get my son in to see a doctor!
Dont let it get to you. He said a stupid thing. Im glad your mom was there to advocate with you. At least the work was done-good for you.
Next time go to a different doctor-some are just idiots.
Hope you feel better today. OO