Because 99% of the time I can’t accept it and don’t want to. Probably denial, or maybe I don’t actually have sz. I do not think I will ever find out. Why is this so hard? I think partly the stigma.
I don’t want to accept that I have schizophrenia either.
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For some odd reason you are not getting diagnosed. It should take 6 months to get diagnosed, not six years or however long it’s taken.
No offense, but I’m starting to think that the problem is with you and you are doing something wrong when it comes to getting a diagnosis. If it was me, I would take 5 minutes out of my day and make a phone call to get this straightened out and I would be willing to travel 200 miles to get diagnosed if that’s what it takes.
I think you said once (maybe not) that other people have this problem with getting diagnosed too. I’ve never known or heard of some going undiagnosed as long as you have.
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SZ accepted you, isn’t that something?
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In my eyes, as long as someone is on antipsychotics and experiences psychosis they’re either bipolar or schizophrenic. Given you have mentioned being unable to hold work, it appears like schizophrenia -
I agree with nick. Get diagnosed or at least read up on the literature to know how best to accommodate the illness - it’s obvious you have something ; as otherwise you’d never have relapsed even if it was years ago.
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I think the real problem is I take my meds as prescribed so they never or rarely have to see me. If I stopped my meds it would be evident as I’d be in hospital. As long as I take my meds they don’t care. Officially the dx is schizoaffective but it often changes every time I see a new pdoc. Which is basically mostly every time I see a pdoc they don’t know me or my history well enough.
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Being unable to hold down work could also be autism though. I read there are more people not working with this as well. However I agree. Could have sz but I’m just not willing to ever accept it.
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This is what my GP has me down as. Mental health team said schizoaffective , once said schizophrenia … so no one here seems to care or want to get to the bottom of it.
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The first half of that is an excuse.You don’t leave it up to them, you need to be proactive and demand that you get a diagnosis. If you’re seeing different doctors that’s kind of an excuse too. I can’t believe none of the doctors you’ve seen haven’t stayed at their jobs for more than two years. That would be more than enough time to get an official diagnosis. No, something is going on here that doesn’t make sense, why have you really not gotten diagnosed?
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You really don’t have any idea of how the NHS here is. 
I have tried to go private. Three different times, one through insurance and twice out of my pocket. Each said different things. One said bipolar , another said schizoaffective.
Whenever I take out travel insurance I’ll say it’s schizoaffective because that’s my current dx on my NHS mental health record. but I’m always feeling confused maybe because I’m unwilling to accept it. I’m not saying you’re wrong.
I often go years without seeing someone. Last time I saw someone was a few weeks ago due to anxiety and even then I couldn’t get to a doc. I had to see a nurse.
Also I don’t feel I get manic either.
Yeah I agree with @77nick77
Something is not right here
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As long as I’m not out and about giving them grief with my behavior, or brining it to light they don’t care how I’m doing. That’s how I feel.
I get frustrated with the system. And often feel the only way to get help is to get off these damm meds, but I won’t do that. I don’t want to go through that again.
It’s not much tough to determine schizophrenia. If someone has paronioa, delusions and hallucinations it’s confirm to schizophrenia. If you are taking medicine then it’s schizoeffective.
But in the starting its difficult to aware of.
Take care.
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