How do you feel after having Sz after a while?

DX'd - Other
1

Does the Sz journey getter better over time, or does it take its toll?

  • Better
  • Worse
0 voters
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2

The symptoms are pretty much the same as always. I am pretty good at managing them after three decades of practice.

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3

It has taken time to accept. It has taken time to stabilise. It has also taken time to persevere with goals regarding meds and healthy choices (this is the most time consuming imo)

But after awhile, for me, eight years after onset. Iā€™m content Iā€™m not homeless, Iā€™m not penniless and Iā€™m still clinging to hopes to get more functionality for me

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4

It gets better but you have to do the work. Eating healthy, exercise, sleep hygiene, working with your pdoc to perfect medication etc.

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5

I still donā€™t accept the diagnosis, but if I did Iā€™d say im doing better than I did 14 years ago.

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6

All good answers! Iā€™ve been wondering if it is going to wear me out. Trying hard right now and seems an uphill battle. Sounds like perseverance wins.

7

Itā€™s the only way to win. All the people I have seen sitting around waiting for a med to make everything better are still waiting and their quality of life has backslid all the while. Worst mistake a person can make with this illness (that and using recreational drugs).

Good luck explaining that to them, however.

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8

My cracked brain wonā€™t heal. Iā€™m worn out because of it.

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9

I believe that you can make progress. Even If you have a cracked brain.

You have to focus on what you can control and improve. Defeatism isnā€™t a great strategy.

Cā€™mon @Speedy !

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10

Iā€™m doing my best.

Itā€™s just very hard.

The cracked brain is causing negatives and positives.

Everyday I wake up and notice it being there.

It sucks!

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11

I think itā€™s like with physical pain. The less you focus on it, the better it gets.

Itā€™s time to focus on different things, and try to move on.

Maybe itā€™s early days, but I believe eventually youā€™ll be able to.

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12

Worse in some aspects, better in others.

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13

Thank you for your encouragement.

I hope Iā€™ll recover and will be able to live a better life.

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14

ive accepted my recover but not my behavior. my behavior have a outcome which i learn new things then i forget. sometimes i think its the meds or im misdiagnosed.

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15

Itā€™s like that saying that everybody hates, ā€œIt is what it is.ā€ Iā€™m used to my mind being fuc*ed up. It used to be really bad when I first got sick, then I got stable for a few years then relapsed and it was bad again. Then I had protrusive symptoms for quite a few years and then in my 40ā€™s I started getting noticeably better. Now in my 60ā€™s the symptoms often take a back seat to everything going on around me, sometimes they arenā€™t bad at all. Iā€™ve been employed for many years and I notice I think more about the job while Iā€™m there than the disease.

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16

The meds have gotten better because they found the ones that work itā€™s all about the right therapy and meds when I was on Abilify injections and invega injections I was wayyyy worse off but nothing would of changed without meds

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17

I feel like crap. Discipline over motivation. I force myself to do everything. I can get lost in delusions.

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18

I am really sorry to hear you are having such a time, @2Waynez

I truly hope it improves for you.

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19

Also I forgot to mention the older you get the more you figure out what meds donā€™t work i personally call them ā€œscamsā€ because im basically promised they will work and they donā€™t do nothing ive seen that they work for some like I know a few people who benefit from risperidol or vraylar those were scam meds for me im not saying they donā€™t work for anyone itā€™s just they didnā€™t work for me haldol to some is a scam but itā€™s a miracle for me

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20

My hallucinations have gotten worse over time. (been ill for 12-14 years now). Had some bumpy roads since then like tried adderall while inpatient and smoked marijuana years ago.

Those were huge setbacks. I never got into alochol. Only in college really and not that much really.

I heard positives get better over time, but negatves and cognitive symptoms get worse, which makes it worthless or useless to try and get a career or education going at this point from what Iā€™ve read.

I struggle with getting anything done. I guess I used to be ā€˜brightā€™ or ā€˜smartā€™. I still am but feel like Iā€™m trapped.

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