Ok, so the doctor increased the dose to 60mg in the am and pm. I got an EKG done and I have a slight arrhythmia so I will see my primary physician about that.
I guess I’m just getting old…
Oh! And he prescribed me lamictal for my depression.
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Lamictal is a good med. Sometimes it help to lower the voice too.
Well, I think this makes the 5th week of taking geodon. I also read an amyloban thread and started taking it a week and a half ago. So far I noticed the geodon is less effective than what it use to do which was muffle the voices, but the combination with amyloban makes most of the bad voices go away. Now I just hear a few voices that have been with me since 2015.
On a side note, I took huperzine a last Sunday and my thought broadcasting and derealization went away completely. Unfortunately, it caused a bit of melancholy and dissociation. The effects of taking it now aren’t as vivid as the first time and it’s effects come and go.
That being said, huperzine a is an nmda antagonist. So… I will tell this to my doctor. I mentioned to him about taking memantine once before but I still don’t think he will prescribe it to me. He was even hesitant to prescribe me lamictal because it is off-label treatment. I guess only time will tell now.
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Are you remembering to eat a full 500 calories with every Geodon dose? If not, that could be why it’s less effective.
I’ve actually been eating a little more than that. Honestly, though, I think it is just the medication. Every single one I have taken does this. It works for a week to few weeks then it craps out on me and my disorder becomes disarranged and I’m left with what I began with. So… I will tell my doctor this but I’m so tired of switching medication. I don’t want to change it anymore.
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Hello, everyone! I just wanted to update everything that has happened so far.
I think this is week 7. So…
I am less depressed. I still forget things but I am realizing why. I have many, many, too many things going on in my life.
My derealization is somewhat fading away. Today it went away along with my delusions for about 45 minutes until I took a sarcosine tablet (thought it would help me with memory and spatial awareness but I was wrong) and everything is somewhat crapped out. BUT! I am getting closer to being better!
Mostly all of the bad voices are just plain gone! The only ones left now are those that have been with me for 6 years and even then they don’t frequent my mind.
Some of my vocabulary is coming back. A few memories are too. I think it’s my obsessive disorder and delusional disorder that are making me feel lethargic and forgetful.
What I am taking now:
Geodon 60mg in am and 60 in pm - helps with multiple symptoms.
Huperzine A which is an nmda antagonist and a cholinergic reputable inhibitor - helps mostly with delusions and somewhat with depression
Amyloban 3399 - helps with hallucinations, delusions and general wellness. This one takes a very long time to kick in but it helps.
Well, that’s it for now! I want to replace the Huperzine A with memantine and the DHEA with Zoloft but I don’t see my doctor until next Friday. I don’t even think he would prescribe me memantine in which case I will flat out tell him I am going to take a supplement or two (the other is PQQ which oxidizes the nmda neurons which I have taken before and it helped) that decrease nmda activity.
Lamotrigine 25mg in the morning - might be helping with memory problems and scattered thoughts, but at such a low dose it is almost less effective
DHEA is also an nmda antagonist and modulates glutamate, slightly decreasing it - helps with energy, delusions and depression
Phosphatidylserine does not affect nmda directly, some what effects glutamate, and increases ampa activity as does lamotrigine - helps with memory and delusional disorder
I am happy that geodon working good for you.
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Well, here is the update for the near 2 month mark. A lot of my symptoms have had breakthroughs, but not geodon alone has helped with this. For now, the voices are nearly non-existent with hearing them only three times in the past three days for 10 minutes each time. Before them they were becoming less and less and now if I consider them being there I can’t hear them. My derealization is slowly diminishing with day to day perception slowly becoming clearer. My delusions are somewhat fading in and out of my perception of reality. Each time I think I’m having a conversation with people in my head the next thought is an apiphany that the conversation is not real but instead my anylizqtion of what we might talk about with what history or judgment I have from them. The point of that is the delusions are becoming less. I’m still having cognitive deficits. I can’t remember what I did three weeks ago, never the less 4 months to a year ago…
Other things that have helped me come this far:
Amyloban 3399
Lecithin
Fish Oil
Agmatine - possibly
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I’ve been on 80 x 2 Geodon for over a decade. Geodon has been a very good drug for me. A lot of us swear by it.
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Thank you for updating. Happy for you.
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So, the past few days I have been trying to get in touch with the county pharmacy to refill my prescription. They never could refill it. Then I tried getting a local pharmacy to fill it. They won’t have it ready until after new year. I ran out of my medication. Now I am forced to take one of my older medication, either Latina or Invega, as to not go crazy… Seems my luck has been like this for the past year or more… I am a bit scared that I might go crazy now…
I am sorry to hear that. I hope they can refill it asap. You just hang in there in the meanwhile.
This is my third day without medication. As before I have stated that I am taking supplements. I think it is the amyloban and lecithin that are keeping my sanity in check so far, but I am having symptoms. The voices are still nearly non-existent but I am feeling confused and have a slow perception “spaced out” most of the time. I have been drinking more water than I usually have (which I needed to anyway). I really hope my medication becomes ready soon.
Why can’t they fill it? Supply or too soon? Doctor approval? I have a horrible time with walgreens cause my health system won’t take calls to ask for refills, pharmacy has to request it 7 days ahead. Well walgreens app has a habit of saying it’s been done, 10 days later nothing so I run out cause all my meds are 30 day supply no refill for the system, so even if I do it right, I get screwed. But last month I had to call my pdoc and leave a message that I had walgreens request on 3 dates, they told me walgreens never sent so they had to call walgreens and chew em out. I went 5 days without my twice daily xanax, so didn’t sleep and just messy.
No apologies from pharmacy when I called to complain, they said their app is infallible… and I can’t call pharmacy directly cause Walgreens is all call center now, even more fun.
I use to work for Walgreens and it was terrible! I’m using a local grocery store, Kroger, pharmacy and they won’t receive inventory until after the new year. I tried my county pharmacy but they keep saying either it is too soon to refill or they are closed. Even if I refilled it the day I run completely out it would take another week to refill it. And I’ve been noticing today that my emotions are getting mixed to the point that I’m frustrated with how everything is in my life right now, but I’m keeping everything in the front of my mind that things will be ok. I’m also having a lot of deja vu. It’s freaking me out because that is the first sign of having a seizure. I’m kind of freaking out now, but not too badly. At least I have tomorrow off from work and I have some other antipsychotics left over from what I use to take. I guess once tomorrow comes I will just go ahead and take some left over Invega until I can get my geodon.
As for the pharmacy you chose, I would suggest going through either a local grocer pharmacy, even Walmart, or a private pharmacy. Those tend to be more on point with their patients than Walgreens or CVS because the other two literally only care about the money. Each in their own way but still, pretty bad.
Ok, here is an update which may be my last one. I am not liking the 60mg in am and 60 in pm. I’m going to ask my doctor to lower the dose to 40. And I have wonderful news! Most of my symptoms are diminished! And the antipsychotic is not the only solution.
I’ve been taking large doses of sunflower lecithin for the past two weeks and it is helping everything look real and at times my delusion that people can read my mind is gone. I have also been using Amyloban which has reduced the voices so much that I hear mostly the 5 voices that have been with me for 5 years. They are the only ones I can tolerate well. Amyloban doesn’t do much else than that for me. I have also been using a lot of vitamin b12 because I am too tired throughout the day. I did stop taking bupropion because it was making me go a bit luny. As for today, and I don’t know if it a placebo effect, but I took 600mg of n-acetylcistiene and most of my symptoms that really debilitate me are vanished except the delusion I mentioned before which isn’t as frequent. I am still on lamictal and I tried not taking it for a day and I was having mixed partially manic episodes for that day. Needless to say… need it! Well, that’s it for now! Thank you all for this journey so far! Peace be with you! Ciao!
Sorry to post this late. I’ve dealt with too much the past few months and still alot more to go on…
I stopped using Geodon in Janurary because I fell asleep at work and got fired the next day. So far, Uber and Lyft have been my main source of income until the corona virus epidemic hit and now I’m just about S.O.L.
I am on trifluoperazine now. No side effects. Took two months along with lion’s mane and iron supplements to help reduce the voices.
I posted today because of something I feel like crying over, I am astounded, shocked, and a bunch of other feelings that only cooking (just finished cooking) helped calm me down.
My mother always called it an audio problem. When I was a baby she would smoke near me. Eventually that led me to have ear infections. Ever since then I have always had problems understanding what people say (among other things).
It wasn’t until today she told me I had dyslexia while I was a child. I knew I went to remedial classes to try and combat it but I never knew why. Thirty years later she tells me today. Great! Some new information I can try to combat with!
So I looked online to see what helps with dyslexia.
Funny thing… no prescription medication helps but there is an otc that does.
I took dramamine (low dose) about three hours ago and my “derealization” went away. Still having memory problems but this is a great start.
On webmd it says Ginkgo Biloba helps too. Also, primrose oil does but my prescription is a phenothiazine so I am not taking it because taking those two together can cause seizures. So I am going to try ginkgo biloba tomorrow and see how well it does.
The past three months have been hell, cold, and spacey. My memory is becoming worse, but with the help of sarcosine I am less forgetful and feeling better. I don’t think I will need to take these supplements all my life, but something to help is of highest importance.
Anyway… I hope all of you have been doing well! Please, stay safe! Best of luck to all!
The sleepiness in the morning with Geodon eventually goes away but it does take a while. I was working when I went on it and I had to take a nap when I got to work. I never got caught but I quit taking it in the morning and took both doses at night. I did this for a few years and I stayed unwell the whole time. When I finally started taking it twice a day again it changed my life. It is a good med.
Sorry you lost your job.
Good luck with the supplements.
Like with anyone, it does work for some people. In fact, Geodon was one of the first meds I tried when I was eighteen. It made me better in so many ways back then, but the doctor I saw was an idiot and gave me Abilify instead which gave me some neuroleptic malignant syndrome. I would still recommend geodon but I just cant handle sleeping all day.