The topic at the na meeting was “illness and recovery “ and people talked about their mental health so I did too and after the meeting some girl came up to me and said something like “maybe you won’t need meds a year from now”. First of all you don’t know what I experience truly and second of all it kind of invalidates my illness. I’ll trust my pdoc who will NEVER take me off any of my meds. Oh well it doesn’t matter.
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People are just clueless sometimes
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I get stuff like that all the time. Either people tell me that meds are poison or they insist I’m somehow gifted with some kind of weird power of perception.
It’s not that they are trying to mess with me, they just have really wacky ideas about what hearing voices is really like.
Not a gift at all.
I will never go off of my meds again.
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I’ve heard of such happening at AA/NA meetings before. Except I heard it was from the “old timers.” Whatever, you’ll just have to get used to that kind of ignorance. They might tell you to throw all your meds away. It’s angering, agreed, but you’re gonna keep running into it. Consider the source. But I’m sorry it had to happen to you.
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My family is the opposite.
They keep telling me to stay on my meds.
My father and brother are constantly reminding me to take my meds.
They know very well what happens when I’m not properly medicated.
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It’s fruitless to expect people who don’t know what we go through to understand our illness. The best thing is to humor these people, but say, “I’ve learned from hard experience that I can’t get off these med’s.” At least that is the way it is with me. Personally, I’ve seen a lot of people get off their med’s and then end up worse off in many different ways.
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They don’t understand how important medication is for us… Do you ever get those people who tell you your psychosis is a supernatural gift and you should come off the meds to experience it properly? I hate hearing that so much.
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Can relate; my mother has some, for lack of better term, new-agey spiritual beliefs and will often respond to my complaints of hallucinations with “what if you have ESP and can just see things regular humans can’t?”
It’s a bit infuriating, because I know if I wasn’t on meds how badly that would have made me spiral!
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One guy told me that I just lost the fight with the world…
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Mate. Half the battle is taking the pills and realizing you need them! Your doing better than most and that is great because others can see you doing well and your attitude is spot on!
I’m multi episodic. I’ve been off meds to go through serious breaks. That is damage to the brain and I pay for that for sure! It’s good for me to realize I need meds and take them everyday religiously!
More power to you matey!
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well ya dont have to listen to them. everybody has their own ideas.
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My loved ones thinks sz is something you can walk away from. They see i’m better on meds so they don’t understand why i still have sz diagnosis.
I’m not angry because i love them, but i wish they pay more attention when i try to explain them all the symptoms i have.
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she was probably just trying to be nice, she may even have liked you 
i would have just been like ‘idk, my dr said it might be long term’ or something then follow up with a question about her
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She also told my friend he’s not sober yet because he’s on suboxone.
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True I’m just lucky I’m not impressionable as easily as I was when I was like 21 when I’d listen to any which way terrible advice to anyone who seemed the slightest bit friendly.
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I kinda do the same, I hope when I get older I will snap out if it
My stepfather believes in “natural” care. He actually tried to talk to me about getting off of warfarin for my blood clotting disorder. I have had blood clots in my lungs twice (“extensive” clots, according to the doctors) and one in my calf. I have a Protein C deficiency, and it isn’t going to go away. I have to be on blood thinners for life. Each time I get pulmonary embolisms, I have something like a 30% chance of dying He tried to tell me I’d be fine with some herb. Well, gee, his experience certainly trumps that of trained hematologists, so maybe I should go that route. Yeah… never gonna happen. .
He doesn’t know about my APs. I don’t want him to. He’s one of those “mind over matter” types. So is my grandma. She knows my dad suffers from chronic depression, and she can’t seem to understand why he doesn’t just pick himself up, dust off, and get back to living.
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My wife yells at me if I forget my meds. She has seen me off of them. I wish I could come off of them though.
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I believe it is supernatural but hardly a gift. I think that survival of the fittest is the rule of thumb in the spiritual world as well. Just because it is spiritual doesn’t make it good.
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I thought I shouldn’t tell people about my SZ because they would be judgmental. Now I understand I shouldn’t share this because they always say I shouldn’t take medication, that it’s poison, and they start treating me as if I am spoiled to complain about it - it drives me nuts! This is why I won’t tell anyone anymore!
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