Schizophrenia.com

Do I Belong in a Long Term State Hospital?

Sz gets better with age. That of course by being strict about doing your meds and taking them even tho you feel well.

I dont believe the cobblers its degenerative. If you take a positive approach you are more than capable of having a normal life, with a wife and kids.

Schizophrenia is highly treatable with the right combination of drugs these days.

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Yeah. “Around the block a few times” is a very accurate epitaph. I’ve been struggling with SZ from age 16 until now (58 in a couple of weeks). I’ve been on every psych med in existence I think. When I was wanting to get pregnant we were, naturally, concerned about what meds to put me on that wouldn’t harm the baby. There was a new 2nd generation med on the market which had not yet been tested in pregnancies. (Loxitane or Loxapine) Since all the others AP meds had warnings against pregnancy, the doctor put me on 5 mg of loxapine. Well the response i had to that tiny dose was astounding. I got well!! Not 100% but maybe 95%. And throughout the past 30 years, that med is really the only one I have responded to (although now I take 300 mg instead of 5!!)
In my most recent hospital stay they put me on an Abilify depot injection… I don’t know that it is really doing much yet…maybe it takes a while on it to see benefit.

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Didn’t you write a book in the past @locamotion?
You are capable of great things.

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I don’t agree with her that things will inevitably get worse. Things might get better. They do for some people

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The only requirements for proof of residency are getting bills to that location dated from at least a year previously. Winkwinknudgenudge

I don’t think a state hospital is a foregone conclusion for you at all. There are plenty of places in PA that take adults with complex difficulties. I used to work at a group home like that. It has a long waiting list, but worth looking into. You can PM me for the name of the facility if you like.

I live in a group home and it’s best decision I’ve ever made. I wouldn’t be able to live independently/

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yes, Wave. I wrote a book four or five years ago. It’s no longer in print, so kind of hard to get a copy now. I didn’t market it as it should have been, because I can’t travel etc. Plus the expense. All the reviews I got on it were 5 stars.

But i don’t feel like I could do that now.
Thank you for your faith in me :slight_smile:

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Good point…

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I heard loxapine being discontinued

I agree!

This nurse did wrong by you.

To say what she said was unprofessional and awful.

If such a thing was to be said it should come from the dr and in a very empathetic empowering optimistic way that you can still have quality of life and hope for the future.

Welcome to the forum.

I don’t think I have seen you here before.(poster)writing this welcome to original poster asking question as I’ve not seen before.

I believe you can have a quality life and a better life than you have now if your husband is abusive I think you should leave him and not tolerate such behaviour.

You should not be abused by anyone.

A group home can give support and still give some independence and freedom.

I lived in a group home for a while.

I had my own room but shared bathroom, lounge and kitchen.

I got to come and go rather freely .

I didn’t feel comfortable eating with other people so I tried to take my food to my room and eat alone and they didn’t like that.

There is staff 24/7.
The staff were nice.

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Thank you for your comment. I’m not new …I’m an old timer from the site sz.com used to have…under the reign of the Mighty Dugal. Lol
I just don’t frequent the site as often as i used to. I don’t know a lot of the people here now. I believe some are old-timers like me, only they changed their tags and now are under new names…but i got lost in the transition .

Yes. I lived in a group home for several years and then in a supportive apartment, until i got married. I wouldn’t mind going back to one. It may be harder for me to find one due to my age and medical condition, i might get turned down. I already got turned down by an assisted living facility.

I am not sure how to go about finding some group homes in the area… i have a case worker who is pretty useless…

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Can you put pressure on her to find out for you or ask for a new support worker?

I was on the old forum too under another user name.
I had a break from forum a few years but came back.

Hey @locamotion, consider this… I’m late onset schizophrenia. My prodromal phase was in my early 40s. My acute phase which consisted of severe terrifying paranoid delusions and hallucinations lasted 10 years until my middle 50s. Then I went into recovery phase for the past 9 years. Meds have worked well for me. In order for any of this to be possible for you you have to have some hope and not let go of it. Hope leads to insight. Insight leads to treatment. Treatment leads to wellness. Meds alone won’t get you there. You need the support of friends and family. There is no replacement for the power of love.

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No she is not right. Schizophrenia can be managed. That is key it can be managed. There’s an argument we lose some moral “agency” due to the medication and underlying condition, but that doesn’t mean we cannot live a life free from incarceration.

Because what she is suggesting is indeed incarceration. I nearly got admitted to mental rehab in March this year and had to win a tribunal to have my section (UK) lifted. As long as you always take your medication in consultation with your doctor, you should be fine. I was expected to be back in hospital this September, it’s now November and I’m doing well. After all, for those of us who eventually want to withdrawn from medication, NOBODY can tell you you can’t if your doctor provides agreement. Yet I am not recommending to come off the medication, that would be a disaster, for someone in your position, I would recommend discussing a treatment plan that provides yourself with moral principles, to avoid “hurting” your family.

Thamks for all the frerdback and outrage on my behalf. The social worker that i mentioned was an employee at the last hospital where I was. She is someone i probably will never have to deal with again.
It is good to hear all of your optimism regarding this illness. My worst span of time was when i was in my 20s… I was stable for my 30s and 40d. However my 50s have been rather disasstrous. I don’t know how to reconcile that fact with the views you all seem to have. You are blessed if you are improving with age. I had hoped to find stasis and peace in my later years, but this far, " it ain’t happenin’.," Granted, my home life is a mess eith abuse from my husband and really nowhere else to go…and my health (physical") is hone and i live in constant severe pain and can’t leave my house much. All of that I’m sure plays a role in my failure to keep a grip.