Hi everyone,
Does anyone here have disorganized schizophrenia? If so, have you managed to get on top of your symptoms and are you able to live a ‘happy’ life? I’ve read about it and I’ve read that it generally has a ‘poor’ prognosis - I was just wondering if that’s the case for all people who get it or whether it can be better for some people. Has anyone with disorganized schizophrenia managed to hold down a job?
I would love to hear any input.
Raffa 
I know someone who probably has disorganized sz. He has very poor insight into illness, doesn’t accept treatment and spends his time secluded in his room, smoking and watching tv. When asked about his condition, he avoids direct answers, but sometimes out of the blue he comes up with strange conspiracy theories about the world and his own family, that mostly don’t make any sense. He wears winter clothes in mid-summer… and the list goes on.
Thanks a lot for your reply. Just out of curiosity, do you know if he sought help during the prodrome phase? Like, in the early phases, was he aware that something was wrong and let others know, or did he just slip into the illness?
It happened 8 years ago. I didn’t know his family at that time. All I know is he was working abroad when it happened. He had left sane and safe but when he came back, he was dramatically changed. He quit his job shortly afterwards citing fatigue, then gradually stopped talking to all his friends and isolated himself. He has never asked for help, but has contemplated suicide several times (without attempting).
my official diagnosis is disorganized schizophrenia. something I discovered when I looked at my records about a year ago, I dont like looking at my records it makes me feel like a failure. I struggle with accepting a diagnosis of this.
I guess my main symptoms are fear of people
and getting anything done.
Im doing better this year. But before I struggled to remember basic daily chores. Im on a self imposed routine that works pretty well now.
I used to be very capable. Full time career and full time student. I first became Ill in my early 20s and then was normal enough to hold a job for 2 decades then had a relapse with a high stress job and family situation.
I am hoping Im on my way out of this and will not get into anymore relapses.
I have been through years of CBT and anti anxiety drugs. I can’t tolerate antipsychotics due to parkinson like symptoms
If you don’t mind me saying so you write pretty well for someone with disorganized sz. I met the nicest guy on the hospital once and he couldn’t speak one intelligible word that I could make out for most of the time we were there. Eventually the doctors (who were really good) were able to clear up some of his thinking and he could put sentences together. That’s when I realized what a nice guy he was.
i dont mind at all it s been a long road to get this far again.
I write better than I speak though. I blank out a lot when speaking.