You’re always so positive. Thanks for that. It sounds like you’re in a good place.
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I have only been able to work 2 months at a time.
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I’m on disability for sza. Have been for years and years. I suffer from chronic insomnia, frequent migraines, and chronic back troubles, all of which prevent me from working. Besides, the sza acts up under the stress of working. I volunteer, but that’s not stressful.
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Wow, 5AM? What time do you go to sleep?
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Disability although it’s SSI which is the lowest kind since I got acutely sick too late for normal disability, and had not worked enough. I continued to try to pass college instead. I could have had a slightly better apartment if I had SSDI but it probably wouldn’t have made that much of a difference in the long run other than I may have been more severely affected by the illness if I were younger at it’s inception, and I may have had a worse experience in if I worked in the minimum wage jobs such as Micky D’s for years instead of using my mind more at college.
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I get $1200 from my work disability but fighting the third time for SSDI. I have a full time in dealing with sz and that’s tough. In the process of changing meds.
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@Raven. Do you have an attorney?
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I’ve been on disability since january 2011. I worked for 5 months March to July 2014. im gonna start looking for work soon
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I have to work, I would be homeless on disability, not sure where I’m going when I retire, Will be screwed with all my health problems
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Yes I have a lawyer that only works SSDI cases
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That’s great! They know how to gather info that supports your case. Good luck!
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Thanks it’s been frustrating so far. I went through the veterans legal aid to get a referral
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SS cut my funds because I didn’t respond to a phone appointment. They notified me 3 times by mail letter.
My life isn’t any different now. Still dependant on my mommy. I just can’t buy new cool things. Can’t order takeaway. The good thing is I already have all my cool things
I am living monk mode
Perhaps I should seek some income in the future. Monk mode is OK atm
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I am on both govt and work insurance. If they want me to go back to work they have to find a job for me that I was previously getting which was $20/hour. A few years ago they moved me to permanent disability.
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May I ask how you get that much? Just wondering since you have to work into it to get more
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@1923mari . I like early. I sleep just on or less than 8 hours so go to bed after early dinner. So in bed a little after 6pm. Read and listen to radio till sleep around 8pm most nights. I’ve found regularity is great!
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Im currently on Disablity and volunteering here and there. I would like to be consistent before actually going through with a real job. Ive been having some off days lately, past month Ive had times/ days where I didn’t sleep for like 30 hours straight. a lot of the medicine just makes me sleepy and slow at things. Maymbe I will ask for something ive tried before and just stick with it, I don’t think any other medicine is gonna do it.
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Applied for disability but didn’t get it (like most people the first time they apply.) I haven’t re-applied, and I don’t plan to unless I have no other option.
I’ve been able to stay in college and make good grades the past two years, and I’m close to graduating. I have to do an internship before I graduate, so I will use that as a gage to see how it will be to work again with sz. I plan to make it work no matter what though (fingers crossed), I love what I’m learning and I want to have a career.
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If you could handle college that’s a really good sign that you can handle work, good luck!
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I work. I was unemployed for months before I was diagnosed and about 6 months after. I hated it as I found not being occupied the worst. Even in hospital I would discharge myself at the first opportunity as I couldn’t stand having nothing to do…
I got a job through family who know my situation, so they cut me some slack.
For anyone thinking of doing it, the benefits are you will have something to do, money and some degree of social contact. Not perfect but I don’t think being on benefits is either…
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