I have had enough of these people.
I am in the middle of drug changes etc and I don’t know if they will let me self-discharge from their services.
Can they do anything? Is it my choice?
I live in England
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Idk if its a good time for you to do that, get settled on your meds first for a few, you got to prove that you will be able to cope,
I discharged my cpn in 2013, i think she suggested it and i agreed there was no point having her come to check up on me when i was managing so well anyway.
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I don’t know. They probably won’t let you at the moment. I think these services can control people a lot if they want to. Like putting people on Community Treatment Orders and forcing them to get injections.
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This is what I am afraid of.
I have been refusing to take anything sedating or that causes me to gain weight. Which we all know is only a handful of drugs, and I am on the last one Arirpiprazole and it’s not working out at the moment and I cannot go any higher on it.
After I posted this yesterday, I wrote a 1,000 word email to the patient advice people as the help line told me to as they wouldn’t give me any advice, so I will see what they say once they read that I guess.
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I don’t think these meds are going to work any better. I have been on the highest recommended dose now for a few months and still have some symptoms. Not to mention that I have never been on this drug without taking Diazepam, so once I am off that everything might fall a part anyway.
I am fine with how I am now - its an improvement even though it’s not quite working. I do not want to take anything different and my psychiatrist cannot negotiate with me on this.
This is why I want to just move on from them, as I am sick of the experimental approach they take with some pretty toxic drugs.
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Having some symptoms can be acceptable when on a medication. It doesn’t mean it has to be changed. You can’t be that bad if you are able to work.
Good luck.
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I have been making this argument with my pdoc that I am able to work, but he just says I need to cut my hours as it has caused multiple relapses.
I might work, but it’s very stressful. So balancing that isn’t easy.
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He is white male.
He has caused me to have my drivers license revoked and now I cannot afford to travel to work. It cost me £10 in diesel to drive there a day, or £30 on the train and bus which takes twice as long.
He knows I don’t like crowded places as well, yet he still did this.
The letter said that unless I follow his recommendations, I will not get my license back and in his last letter said I refused to take Clozaril.
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That sucks man. By the way I am a white Australian, but in my experience I like Indian male psychiatrists a lot more.
It sounds like they are trying to use coercion to get you to do what they want.
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I think you’re right. I saw one in hospital before and he was very calm and he listened a lot.
Coercion is exactly what it is, that word is spot on. That’s why I am taking the go ■■■■ yourself approach and distancing myself from them.
Ah cool, what part of Australia are you from?
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I live in Wollongong, NSW. It is a city south of Sydney.
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Nice man, that must be a pretty cool place to live!
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Yeah it is right on the coast. Nice environment.
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Cool man. Thanks for talking this through with me. I don’t feel like I have anyone irl I can talk to so this really helps.
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Discharge yourself from services. Stop meds . Get ill and relapse/do something stupid/ . Get sectioned. Get put on a CTO. Seems like a perfect plan to me 
That’s a bit extreme considering you do not know my case or circumstances
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I’m just pointing out a very real possibility.
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Thinking you’ll need to play “the game” to get your license back. That means working with current doc, taking meds – even if they’re not the ones you want right now – and making “the system” happy that you are on the path to stability. Discharging yourself will just freak them out. Once you’ve gotten your license back you can change docs and meds.
That would be my approach. I appreciate the freedom that comes from having one’s own wheels.
That being said, I’m not familiar with your financials. Is it feasible for you to dial back work at present? You won’t have to forfeit anything purchased on time?
Sending the best wishes I can your way, this is certainly a tough situation. You have my sympathies.
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Thanks for your message @anon82948922
It has made me very angry how the driving people have worded the letter as it’s coercive in terms of my medical treatment - I will have to wait a few days before I can calm down about this I think before I can think clearly again.
I cannot go on another weight gaining drug. It has taken me over 2 years to lose just half the weight I put on thanks to Olanzapine. Clozaril will be even worse and I don’t want to go through all that again. I cannot concentrate when I am on the sedating meds for work either which is another reason.
I have already had to cut down to four days as it was too much. I cannot afford to lose another day in the week as I am breaking even each month. I managed to rebuild my life when stable for 18 months on Lurisadone, but then that got too much side effects and I had to stop it.
I have failed in the last year to find a drug that works properly, and as a result I am now also dependent on Diazepam as I have been on that for months now.
Thanks Pixel. It’s difficult because no one seems to have the answers and I try and find out things and get no where. I have written an email to the Patient Advice and liaison service to see what they come back with. It said up to three working days so hope to hear back from them soon.
You don’t want to be on a CTO! It sucks!! When on one you won’t have no choice what medication you take or what dosage. And they can inject it in you each month and if you don’t comply you get your door kicked in my the police.
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