Hi and thank you to anyone that responds with advice or encouragement.
So on uzedy i achieve a baseline level of relief which feels like no relief at all but for those of us with this we know that its nicer to us if were on meds.
Even the uzedy on a higher schizophrenia dose gave extreme side effects for a month straight it was horrible.
One thing i havent been fortunate enough to try are 2 or 3 stronger antipsychotics at a dose just under the side effect range.
Ive tried caplyta and abilify together but with no success.
Can any one point me to two or three names that might have tricked the voices into being nicer to them or leaving them alone for longer periods of the day?
Ive had a high dose of zyprexa and haldol together and ended up accidentally overdosing on a third medication on accident because i was so fried so im not trying to go back there ever.
My guess for the future is one day we will have a watch that will protect our brains from imbalances but i would guess thats a damn 100 years off unfortunately.
In short any medication combinations at lower than drastic side effect doses i would love to discuss with my pdoc. My first discussion for him is to ask about Zyprexa with the Uzedy but thats just a launching point. Hes interested in trying clozaril does any body combo that as my families input is to always have me on an injectable, even though im med compliant but like a lot of us i dont get to make all my own decisions.
Im 10 years in fully medicated ive got hope for recovery a new med or new medical device.
My councelor says he has people doing better on different combinations i had hope i do wonder if people just start lying to their councelors out of their own peace of mind.
It didn’t matter what combination I was put on, I always had positive symptoms. What has worked best for me is CBT, regular therapy to manage stress, better diet, exercise, and distracting hobbies. I’m never going to be free of voices but I no longer have to pay attention to them. It was learn to cope with them or have to take such large doses of APs I was incapacitated. What good is being free of symptoms if you’re free of enjoying life?
Totally shutterbug i appreciate the advice. They are just super stressful symptoms sometimes and after talking to a councelor who has people with less symptoms im reaching out for advice.
Ive had more and less for long periods of time and it just happens to be more at the moment.
I’m sorry, I wish I had something better. I’d like to not have this traveling circus and I’d like to be off the Vraylar even if it is a low amount. One thing that works for me and select others is a supplement called Amyloban 3399. It’s expensive and it is a potent lion’s mane mushroom extract. I bought it to help with negative symptoms (it does a bit) but it had the unintended effect of boosting my APs. They work twice as well with no more side-effects. I can use half the APs when I take this one supplement.
Caveats:
The cheaper varieties I have tried so far do not work. Just this one.
It is expensive.
It does not work for everyone, less than half.
It gives some extreme anxiety, so be prepared for that.
The other thing is stress management. It’s a big deal. Lower stress means lowered positive symptoms. I carefully curate my Facebook feed and avoid all news now to lower my stress. It helps a lot.
Okay awesome that is a supplement i know nothing about but im always excited about options that will have the posibility to help! When i can im definitely giving it a shot and i really appreciate the detailed response!
My symptoms are definitely a traveling circus as well and luckily decisions i make still have an impact. Ive been a passenger on this ship before and it is truly unnerving and terrifying!
Medicine differs for different people…you can try cobenfy with caplyta and/or amisulpride if you need to try polypharmacy, do check with your psychiatrist
My doctor set up an appointment for Monday he threw out cobenfy hopefully because its supposed to act on a different part of the brain and the usuals do very little for me.
Man this nonsense can literally be torture.
I also dont see how the voices arent real helps anyone with voices.
All my doctors and therapists totally get we hear voices and dont hope to have an understanding as to why in our lifetime. The brain is a mystery.
All about controlling what im exposed to in a day as much as possible, yesterday was really rough but let me in on somethings to hopefully prevent more hours like it.
Zyprexa combo with uzedy is definitely helping me. My pdoc doesn’t like zyprexa long term because of its metabolic effects. Its being nice too me im thankful.
