Several Psychiatrists have certified you have severe mental illness, sz/sza, personality disorder etc etc for the past years/ decades even. You can’t hold down a job despite trying with all your might
Yet still people don’t understand how bad it is eg family, friends, strangers
Even other mentally ill patients in hospital may not understand
Its like were up against it from every angle
Even strangers on this forum don’t always understand how bad you are because you can write coherently
Over the years they say just Snap out of it, its not that bad, try this, you look really well, your sibling has more to contend with with the kids
Its a neurological usually lifelong thing and dx from hell
Yeah, I wish people would cut me a bit more of a break. It’s a funny disease especially with the stigma attached.
It can be annoying at times but tbh id rather my mi be on the invisible side most of the time
Yeah I hear you @anon29983254
Cut me some slack people!
I do have many limitations. Some are due to the illness, some I’ve been dragging along all my life. But I also have strengths, and I’ve managed to find a niche where my assets can prove helpful to all parties involved. This allows me to overlook most situations where I perform badly. Because I have things going for me. Someone once told me there are 4 pillars that uphold our mental state: friends, romantic love, profession/hobbies and physical health. One can survive on 2, just barely, but all 4 are needed for thriving.
yes really true.
dr.s support staff. fathers. neighbors in the past.
ttuly a poor thing to have going on during that.
Unfortunately @Andrey i dont have the first 3, i dont feel any positive emotions or any pleasure in anything or anyone, i dont have friends or any hobbies or profession or job. I just have my hubby who i care for and my family, which is still something but i struggle like hell with this illness
Yes it’s sad.
People don’t be patient sometimes with accommodations.
It feels ■■■■■■ lonely nobody understands me except myself, doctors tell me im ill, hubby is caring but noone gets anything truly. Im tired of being on this frigging meds, so im sick of going round in circles. Mh are useless. Meds make me numb, tired frustrated can’t concentrate on anything
I don’t have any answers
Thank you Ducky and I appreciate you, your perspective and sentiment.
I’m an ISTP and it’s so frustrating when you articulate yourself and
recieve a euphamistic response. I try to stay measured, but it makes
me want to lose my **** lash out and question someone inteligence.
That’s just a personality impulse I can’t control. It’s hard to tell
where the line is, where the diagnosis stops and the disfuntions from
our personalities start. Some people suck. Write em off, don’t try to
understand there feelings, motives, intentions.
Ok enough of that, really your directness and honesty was a breath of fresh
air, so thanks. I hope you start feeling better soon.
when i got diagnosed my family started to be alot nicer to me and my dad stopped nagging me about sorting my life out. Its different for everyone but my diagnosis lifted a weight of my shoulders. I gave myself a break. If i’m struggling then its clearly visible in my eyes and face. Thats when i need to be in a controlled environment where everyones really lovely cuz i’m all vulnerable and sensitive on the brink of psychosis. I’m lucky in many respects, i have my girlfriend who looks after me. She has been amazing during my hard times and stuck by me
I’ve learned to make a face when I have obviously blundered in a MI way. That communicates that I’m aware of it and that helps others understand.
certain things i can’t find the words to express but what helps me is the fact that i can explain to others how i’m feeling. Thats like a puzzle that solves itself. If you can explain how you feel then you can set boundaries and set the standard of how you want to be treated.
I remember when i felt so stuck like I was in a box and its a horrible situation
I feel like I only had a taste of what some of you guys experieced, but I’m always afraid it will come back. I know it can very sad and hard illness and sometimes online friends can make it not seems so bad
And you’re right the pdocs won’t ever really get it I feel like, but I hope tour family and friends believe you and try and understand, always helps
I only had thought broadcasting for like 5 years so I don’t consider myself very severe, but that was enough to be able to empathize with some of you guys, it’s definitely really hard
Reminds me of how my family are always trying to force me to go out in public.
Thankyou @Menk good advice and thanks for the compliment i know exactly what you mean.
I do go around in circles a lot, i have only a handful of people to discuss things with irl
Like my meds for instance, i consider coming off depot injection every week but my husband wont have it, he says i need it badly, nurse says i do too. Its frustrating but i have to stay put without changing anything to keep them happy and im so unhappy and miserable mostly, im numb from meds im sure of it
@anon59642972 in my experience the pdocs have little time to spend with me and mh are more and more stretched these days
Noone has ever questioned whether im ill because thats a given. Its the fact they can no where near comprehend the pain i go through that is troubling me. My husband understands a small fraction of what its like. My old nurse before i moved used to be really good and i miss her but i live in a different area now so dont see her.