1 week on Clozapine

Medications
1

And I am quitting it.

At least I gave it a try

Side effects I had on just 75mg a day on titration were:

  • Sleepiness throughout the day.
  • Constipation that lasted 4 days and is still not resolved.
  • Messing my bed (Not done that since I was a kid)
  • Extreme nausea that was lasting throughout the day

In the end I was not happy with it. Only on 75mg did I get these effects, and I can only imagine how much worse they would have got if I’d continued treatment.

I had no benefit in my mental state. Effectively all the drug did was make me sleep a lot, and when I was awake I just felt physically sick

Please note this is not a review, and these things might not happen to you if you take it, but just trying to explain my reasons clearly as to why I have decided not to proceed with it

Be interesting to hear what the doctors come back with now, given my statement of not wanting to try anything right now, but instead now I am on just 500mg Amisulpride, to give this a go…

My thoughts are that if the 1200mg Amisulpride was not fully effective, I want to experiment with it and see if 500mg seems to lead to a similar treatment outcome - which I think is perfectly reasonable to see what happens.

I hated the attention on Clozapine. The whole community titration process was shambolic, and I hope I never have to experience that again

Time will tell what will happen, but the mental health services now no longer have full access to my inner most thoughts and symptoms.

It will be up to me to judge if I need the support or not, and I will not be subject to tick box questions from idiotic people.

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Just give it some time.
I take it and i only have drooling
as side effect

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I didn’t like clozapine in higher dosage either. I had to quit because of tachycardia.

I now take 12.5 mg clozapine to help me sleep.

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I understand your decision. I just thought the side effects were dose dependent. You see I were on 600 mg Closapine and 300 mg Clopixol every other week and I had drolling, constipation, weight gain and solomness as main side effects and although that it was very effective for my illness I simply just found the side effects too harsh.

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I hate this process. Hope you get through this and find something acceptable.

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Sorry it didn’t work out. I also would not take it if it caused bet wetting. I am still on 300mg clozapine.

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I feel pathetic that it affected me so badly on such a low dose.

Guess I was more aware of it, I don’t know

:confused:

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At least I tried it after saying no for good reason over so many years

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Amulspride is good med, but why don’t you try any injection shot.

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It has not been as effective as it should be for some time now and I have been stubborn about seeking treatment when the side effects have been so mild

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I was on 800 mgs daily.

The side effects never go away. With Clozapine, the body responded the same way at 50 mgs as 800 mgs.

Sleeping 12 hours a night wasn’t pleasant. Tiredness, weight gain, etc, acid reflux, etc, etc…by far the worst medication I tried.

Did it work for you? And, do you have other options in case the Amisulpride experiment fails?

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Nope :frowning: I would give it a review just like yours.

Amisulpride is finished now.

Starting a new med asap. Flupentixol

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Good. I hope you find something that works for you.

Sometimes you need 2 medications. The trick is to notice which ones reduce the symptoms by, say, 50 percent or more…and then perhaps mix them.

For instance, I was on 95 mgs Haldol once. It didn’t work. However, with Abilify, even 5 mgs of Haldol has made me symptom free.

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That’s next stage, as I have tried most Atypicals that are available in the UK…

Now we’re trying the older ones

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Yeah, if Amisulpride decreases symptoms by say 50 percent, you should keep this in mind (in case you need 2 in the future).

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This is what I need to do. I’m on Geodon, and I need a 1st gen (Navane) with it.

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I take 3 antipsychotics just a little reduction in any of them would get me admitted immediately.
Good luck with the fluanxol it is said to be one of the better oldies and that’s an evergreen.

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