Ive been thinking about whether or not I would benefit from participating in studies that incluee MRI. Do you think having physical confirmation of your sz/sza would help you with accepting that you are mentally ill? Or would it just be depressing? Or what if your brain patterns showed something completely unexpected? My elder sister, a med student, told me she would never have a brain scan bc siblings of people with Sz/Sza show the same abnormal brain patterns as their siblings with a the disease. And i guess she couldnt handle the idea of hard confirmation that she could be at risk of psychosis too. Would you be willing to peer into the deep mechanisms of your brain functioning?
What if the scan showed up fine and the doctor took you off meds cause he thought you didn’t need them… Zombie Apocalypse!!!
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That is one thing i would legitamtely worry about…ive spent two years trying to accept my diagnosis and what if i was right all along and im not crazy lol
I would like to participate in these studies but I’m not sure about how to go about it.
I tried to participate at one at university of georgia but i never got an email back and i only knew about it from my med school sister but i bet if you searched for sz studies at universities you could find something. Im weighing rather or not to look deeper myself
Thanks for the info. I would like to know if my brain looks healthy and well functioning or damaged from psychosis. I’ve made a good effort at being brain healthy these days and am very curious to see what the results would be. I am going to look into these studies.
I’m trying to get an MRI of my brain, but I haven’t felt well enough to wait at my GP’s office for a walk-in appointment lately. I feel like a clot is in my brain causing all kinds of pain and SZ symptoms.
Currently taking lysine to dissolve clots out of a hunch, and it’s working, but slowly. Only thing that made a difference in the pain factor lately.
So you were diagnosed sz but you think its really blot clots? When you say pain do you mean terrible headaches or migraines? Sorry i am just curious as to your story
Kinda curious about this too. I get terrible migraines and I’m curious as to whether it’s common with Sz
My headaches stopped when i startd my med regimen of ap and other but not sure if ap is helping (combatting swollen ventricles) or propranolol (also known to help headaches). I used to take excedrin multiple times a day since early teens but few headaches now after meds
I had a brain MRI maybe 18 years ago. It was right after I had my daughter and they md thought I had MS. It was a normal MRI.
When was your diagnosis relative to MRI
I was diagnosed a year ago with sza
So it makes sense that it could be “normal” previously…
oh I was hoping they were wrong about the sza
Wait seriously? I currently take a ton of Motrin for the headaches. I also noticed the worse the headaches get, the worse the symptoms are. I didn’t realize the ap could help with the headaches too.
And then again if looking for MS could have had signs of sza but overlooked. Sorry just analyzing here. I believe not everyone with sz/sza might have a “typically” abnormal scan anyway just my questioning its a topic i am very curious about
But I’ve had psychosis since I was a teen, so why didn’t the sza show up when I was thirty and had the MRI?
for me any pain triggers a separation from reality even if only slight. I freaking hate pain!
Yes, enlarged prefrontal ventricals can cause headaches and are a physiological sign of sz:sza. So i assume aps should have the ability to help. But from my own empirical experience i cant say if its the various aps ive been on or the propranolol ive been on since about 3 weeks after my diagnosis