When did it get better for you?
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I reached a plateau pretty quickly once I was back on abilify. And I’ve been “stable” ever since but haven’t really been improving.
I was pretty bad before I found the right med. So it got better then I guess.
I’m always on the lookout to see if I can improve things even a little.
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First I had to find the right meds so my positive symptoms could get better, then I needed to find the motivation to combat my negative and cognitive symptoms. I’ve been pretty much symptom-free for maybe 3 years now.
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I have no idea. But I look forward to not being told I’m hallucinating and delusional anymore
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My Catatonia and visual hallucinations dwindled like 2 months after the shot, sleep improved like 3 months, attention to conversations like 5 months, after an increase injection, a week and a 1/2 after the increase visual hallucinations weren’t happening as much and I wasn’t seeing stuff like the devils face in church, a gigantic man crossing the street, people jumping out towards me while in the car, walking upstairs and seeing like a gigantic emoji character right in front of me, then I’d try sleep and would see all different configurations of my drawings in my head. So those experiences all went away. Now I am losing touch and voices became more of a problem, unless now I’m becoming more aware and know they are voices. Catatonia is less and my moods feel good besides a racing mind but I wouldn’t trade that with anything else that makes me apathetic or before my mind raced, I was always hopeless, felt paralyzed and acted on urges to hurt my arm. So it is getting better little by little within the past 6 months
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How did you combat negative and cognitive symptoms?
After a few years of fluctuating between high doses of meds and cold turkey off meds, between being a suicidal zombie and a suicidal lunatic…things are better. Not perfect. But im happy/content regularly.
I really really hope you find a way to cope with all that is coming your way. I know you have had it hard, things are tough.
Please keep hope alive…even after months or years of trouble, things can still get better. I know several people who struggled for a long time and eventually got better - happy, content, stable. Really!
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I really don’t know when it gets better, I’m still waiting. I keep swallowing pills and hoping today will be the day I get out of bed and get to feeling like my old self again.
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A few things aligned in my life in a way that really motivated me to do everything I could to get better. They weren’t mostly good things. From there I just pushed myself more and more every day. It was exhausting. I started reading books, started doing my own chores and taking care of myself, working out, planning and organizing my life so I could remember to do things, being more social… basically just tried to do the opposite of all the things I was struggling with. It took a couple of years. I also had the social support and economic security that I think everyone needs if they are to get better from this illness.
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Things felt better when I got my own place to live. I rent a room in a house. It’s a very quiet area but I’m not completely alone. I don’t have to justify my time to anyone. No one asking why I’m still in bed or complaining cause yeah I’m going to watch Shawshank redemption again. Being able to work on myself without an audience feels right…better.
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Things didn’t get better for me until I found my right med. I went on disability in January 2015 because I just couldn’t handle working anymore and I was calling out at least once a week. I was on Haldol then, which was raised all the way up to 30 mg during the past three years.
Two months ago, I was dangerously close to going inpatient, so my pdoc recommended switching to something else. I started Zyprexa and almost immediately started feeling better. I’m now going into week 8 and the change is nothing short of miraculous. Even my wicked paranoia is gone. I’m currently job hunting to find something that’s got a good routine to it. I’m looking forward to getting off disability and making more money.
I’m not saying Zyprexa is the answer for everyone, just that it’s possible to find the right med for you to get better.
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After the first two years of psychosis I started to improve a little and then I became stable. I got a job and eventually a car and eventually enrolled myself in college and made a couple friends.
Unfortunately, I relapsed, probably due to drug use. But I started over when I quit drugs and got another job, enrolled in a different college and I became stable again. This was in my thirties. Around 40 years old I started making real improvements and my symptoms went down. My life continued on and just about a year or two ago at age 57 I finally got the peace of mind I craved for so many years. And I have great moments ofv peace and my mind slows down and things get quiet now.
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The delusions began to lose their grip on me at about three years after onset. It went back and forth for a few months, until it felt totally within my control to decide whether to believe them or disavow them. I disavowed them eventually and they never came back. However they’ve been gone awhile and I don’t feel like I’m recovering anymore. The next step would be the voices starting to leave, but I’m not crazy enough to expect that!
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