In my Tribunal mental health report it says I have intensive support in the community by the Intellectual disability team and that they are meeting my needs very good?
The support I get is
Supported housing, means their are staff here 24/7. I get 31 one-to-one hours a week. We have sleep in staff 7 nights a week
I have funding go to NHS day centre 4 days a week for people with Intellectual disabilities.
I see or speak to my community nurse anytime I want. If he isn’t around I speak to a member of his team, I see him at lease every 2 weeks. He is my care coordinator, since they say I have delusions around my pdoc he manages my care.
I see pdoc very quickly if unwell, within a week.
I have input to manage my finances?
What care services do you get from community support to let you live independently in the community?
I’m in an adult foster care home and am very glad I don’t live independently. I couldn’t handle it anymore. I’ll be here until I die or go into a nursing home.
I was getting 3 hous a week support from a care agency. They mistakenly didn’t charge me for ages and then dumped a hefty bill on me. My stepdaughter who used to work for the company but had a falling out with the owner(more and more responsibility for crap pay) then got someone she knew to come in . It cost me less per month although the person was getting more money than a care agency worker would have got .
That worked well until the virus situation got worse, and my stepdaughter put a halt to it because the cleaner was working at multiple places. She was then given the green light to come again but less than a month later a child went down with Covid att a school she cleans.
Presently my granddaughters are coming in . My stepdaughter does my grocery shopping. I send her a list beforehand. My stepdaughter comes to any appointments I have and is informed by the housing association of anything that’s going to happen with me.
I get an home attendant service that get together with my insurance which is connected to my mom which is connected to this earth. So yea we are connected.
firemonkey - I’m really happy you are getting support now under your new local authority/care team and that your stepdaughter is supporting you. And that you have the ASD diagnosis. I read all your post here as I do look up to you. You are very intelligent. ASD is a lifelong condition which won’t change like SZ/SZA diagnosis can change from time to time.
My psychiatric dxes have gone hither and thither over the years. Even though the current one is the best I’ve ever had he chops and changes over the dx. Oct 2018 -schizophrenia and likely ASD; Oct 2019 has a closer look at the notes which show a history of mood swings concurrent with psychotic symptoms dx changed to schizoaffective, Oct 2020 changes it back to schizophrenia on account of the ASD and supposed history of just mild depression(do you have several sets of ECT for mild depression?!) Also I was trying to recall mood symptoms prior to being on the depot(there were) but the fact my moods are currently reasonably OK,occasional slight dips aside, had him thinking quite wrongly that that applied retrospectively.
My diagnosis have been consistent since 2013. SZA. and ID… It upsets me that they changed them before from Bipolar mixed affective disorder to SZA. And also they said I had BPD traits which has been taken off now as well as ASD traits… I feel they made a mistake with all them before and I’m questioning the current dxes of SZA and intellectual disability dxes as they’ve made mistakes before. I don’t feel I have a mental illness and they say I lack insight?
I’d question the ID more than the mental illness , but then you’d most likely end up with crap support for the mental illness by itself.
I know a person,on a high IQ group I go on, who was given an IQ of 75.while in acute state of psychosis. He now gets scores that place him well into the 99th percentile.
Thats why I won’t question the IQ test as I get intensive support under the learning disability team which I wouldn’t get under the generic mental health team, as they are rubbish and over-stretched. Anyway the LD psychologist thinks I have Learning disabilities, in the report ‘‘Billy had also requested an updating capacity assessment in respect of the appointeeship as he wishes to manage finances himself. This was still ongoing but the psychologist undertaking the assessment had confirmed to the RC (pdoc) that she considered Billy definitely had a Intellectual disability, as for example, he could repeat things but not demonstrate an understanding of them’’
When I was in Sweden I lived in a group home for a year I think.
After that I attended a activity house that had pottery ,sewing,cooking etc
It was a great place for mentally I’ll people and you could come and go as you please.
You could buy cheap lunch there.
They closed the house down and instead they have work groups where you work a few hours for a cheap pay that doesn’t affect your pension.
I’m in Australia now.
Where I live there is no support I can get to.
I am so well at moment that my family’s support is enough and I go to my gp.
I take latuda and sleeping tablets when needed.
When I was in SA I had a care/support worker I met every now and then and I had psychiatrist.
I wouldn’t mind going to a activity house for mentally ill where I could maybe socialise etc but I don’t have one near me .
I think they are very helpful and good though.
Shame they close them down but they might be expensive to run.
When I lived in the Gold Coast they had a group of schizophrenics get together once a month for a meeting and just talk but I didn’t participate in that.
I would probably feel uncomfortable like I usually do sitting at table …(I rather dance on them) ha ha ha ha ha
I’m thankful to be as independent as I am at the moment.
I do get lots of help from my family though and from being on the pension helps me.
I see my care coordinator every two weeks unless he disappears on me for a time, but there is always a duty worker on
We have a local helpline here run by the NHS, but they usually just send the ambulance and police round as I am losing my ■■■■ when I call them
The new psychiatrist I have calls me when things are happening that are not good. I have never known a pdoc from the NHS to pick up the phone, and I think that’s really good.
He even faxed my new prescription directly to the pharmacy yesterday so I’d get it asap.
The doctor seems so nice. He makes time for me, which I appreciate. I meet him f2f on the 2nd November
Looking forward to it as he replaced my old pdoc of 16 years back in March, so not met because of Covid.
Hospital wise I have not been admitted for two years, as I have been pretty stable psychosis wise on Amisulpride, but we have been working through autism and anxiety issues, and I was seeing a psychologist once a week (f2f or phone)