Update on my health

Chris was genetically screened for Ehlers-Danlos syndrome this year. That affects joints and connective tissue. Maybe worth a quick Dr Google consult and then take it to your team if needed?

I may be totally off, but just mentioning it in case it helps. Chris has homocystinuria, but that wouldn’t match what you describe. He’s got aneurysms in three places in his thoracic aorta, so they ran some genetic testing to figure out why, including Ehlers Danlos.

I hope the chemo is successful.

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Thanks @anon28552576

Good luck with chemo. :four_leaf_clover:

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Thanks @anon70814080

Good luck with treatment, hope it helps

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Good luck with treatment. Be well.

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Thanks @anon67051439 @TheSecondVariety

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I’ll pray it works? My ex found out too late and she succumbed to Cancer Feb 2019, My friend also just passed with it :frowning: i give money to wcr to try help find better treatments.

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I really hope you feel incredible after the chemo. I wish you the best. Hang in there. :heart: :purple_heart: :blue_heart:

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@daydreamer , I have 2 conditions it’ll help but neither are cancer thankfully.

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Thanks @Happy_H

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Are they putting you on methotrexate? That is a chemotherapy drug but the doses they prescribe aren’t as strong as what they use when treating cancer. They use it to fight many diseases that involve the immune system. I’m on methotrexate as well as two other immune suppressants. Unfortunately it is par for the course for auto immune disorders. Because your immune system will be compromised you will need to wear a mask at all times, avoid crowds and get regular blood work. Hope this eases your mind somewhat.

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@sweetpotatocasserole , they talked about that drug, but decided to put me on something else. I don’t remember the name but they will prescribe it to me after an eye exam with an ophthalmologist. I can’t believe you need 3 immunosuppressants! Omg! I feel so bad for you. Thanks for the tips.

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