and other psychotic disorders. i want to write a book for people who have just been diagnosed about how to live day to day with psychosis, paranoia, hallucinations etc. treatments like ect, rtms and different medications and their effects, therapy, how it affects day to day living, with a family section on how to and how not to deal with a sibling son or daughter parent spouse ect. a section on diet and how to minimize symptoms through eating the right foods and avoiding weight gain, with testimonials from sufferers on how it affected them. vitamin treatments, exclusion diets etc. a section on current theories and research in this area for new treatments, a section on thought broadcasting and other delusions. how to apply for disability and what to expect. you know just everything that we go through every day and how to survive and hopefully thrive inspite of our disabilities. would any of you be willing to contribute? under your user names of course. i think it would be great if we could help others in the same boat as ourselves. what do you think?
You have a good idea to publish a handbook for schizophrenia. Unfortunately, I have nothing to contribute given my level of English. I did something else, a multilingual information site on schizophrenia. Maybe you can take a look at skizofrenia-net.blogspot.com. Later the blog will be accessible thru www.skizofrenia.net (not up yet).
If you need support in editing, formatting, and content submissions I can help. I collected a group of stories focused on the unusual experiences and published it online. There are many great ebook platforms and I’d love to help you achieve your goal! I like your idea for a practical well versed book full of information and personal inputs. I hope others on here join in. Let me know or send me a message and I can offer input. While there are things certain people are more aware of than others, having lots of different people’s experiences is what would make it so insightful and helpful!
I was thinking the same thing. I would contribute under my real name, I have no problem with that. I already have a blog in Romanian on coping with SZ and others. I am currently looking for a writing partner for a coping with mental illness handbook, but I can’t find anyone who has the mental stability, the energy and the time to make such an effort.
Pm me anytime with any details , questions, clarifications you might want to add to this. If you’re set to do this, I’m in, with all I can give!
I’d like to help with what I know about me. It’s great idea you have. But I’m swedish. I know nothing about your laws and what help you get in USA. But I do know my symptoms. And have tried tonnes of different medicins, ap’s, anti depressants, anti anxiety, sleeping pills.
@Comatose, @jaynebeal, @StarryNight, this is such a good thing we could do! There’s been a few books on mental disorders from the patient’s perspective, but I don’t know of any of them being written as a collection of essays from multiple people having the illness.
@jaynebeal since you opened the topic, how do you figure we should organize this? Would you be the co-ordinator? Do you have the time to do that, or do you prefer to just write some of the book? Do you think we should do a collection of essays, or work together on every chapter? First thing first, we should look at similar books and come up with a set of relevant chapters we can agree upon.
I hope more people will come into this boat! I’m so excited about this idea!
well i think we should start with a collection of essays of the prodromal phase so that it’s inclusive for the reader, some of us have had similar prodromal phases, others way different. i want it to be both mind blowing and a comfort to the reader experiencing psychosis for the first time…something that will make them think “holy cow! that’s me!” we can explain before the essays how it starts and what to expect. also the “i’m not sick” stage that everyone goes through and i want the readers to know that this is totally normal. let’s be inclusive as opposed to merely clinical. a book by the patients for future and existing patients, for families affected. we could also get our pdocs involved with asking them what they think is causing schiz and see how many of them are up to speed on the latest research. some pdocs are good and helpful whereas others are just a waste of space. i don’t want to scare any readers out of going to see a shrink but let them make an informed choice. we can list all the medications with testimonials for each one. be realistic about side effects and the positive side of meds. testimonials from people that don’t take meds. on the cover, it will be an ebook obvs but it should be something like “psychosis” or along those lines and then a sort paragraph of deusional questions like: is the government watching you? is your family poisoning you? do you have a chip in your head? are your neighbours telepathic? are you the son of god? that sort of thing. just a few “hooks” to grab the readers attention. i’ll write some of the first few pages tonight and put them on here at some point so you can get a flavour of how i want it to go.
This is such a good idea. If we’re including research maybe we could try to see if family members will write essays to confirm our perspectives. Because if we’re including mostly patients and psychiatrists, we should include our family members too, at least one for each story that sort of balances it. Each story will be individual and unique, leaving it a book that leaves nothing out for someone who needs support.
When people are first diagnosed, especially as teens, they need confirmation that they are informed and doing what’s right for them. If they see stories from patients and family members that reflect their own situations they would feel less isolated and more likely to get help and know what it means. Because the diagnosis can be a shock in and of itself. Can’t wait to start.
Good idea, but I could not contribute much due to my lack of concentration, but all postings of this forum might provide some great information for this book.
Adding the multilingual and multicultural aspect could be great, because sometimes as it is in my case I hear voices in two languages.
I lived in the US 13 years and I know it might be quite difficult to market some products such as books there, if somebody likes to have some financial success. Large companies have lost hundreds of millions just in their efforts to enter the US market because it is very competitive.
Mine talk Swedish, Finnish and English!
great idea, that would have helped me and mrs. sith.
take care 
need cartoons/?? e mail well talk…
Hello, sounds like a great idea. You are more than welcome to use any of the info on my blog: cdbpush.com
Most of the helpful info is from a clinical perspective but perhaps it can give you a few good ideas to get started.
And just an idea: start a blog! Books are great but the internet can be accessed worldwide. I’d be happy to provide web assistance.
Good luck!
Hi. Your website is just cool. Good effort. But you have a typing mistake, it is cbdpush.com…
maybe you could translate it for us mjseu? x