I don’t have TD but I worry about it all the time because I’ve been on AP’s for almost 20 years and the longer you’re on them the higher your chances of developing it. Fortunately the AP’s I have been on have a low incidence of TD but it is always a possibility. For those that do have TD I have now heard about 2 different medications for it. Are there any others? Perhaps one day they can solve this problem…
Don’t you worry you are on Latuda and that is one of those meds that are the least prone to cause eps or TD. The last 30 years I’ve been on very high doses of antipsychotics but I still have not been a victim of TD.To all of you I only have one advice and that is to not fear but just continue your lives as before and never to stop your meds without at least to inform your treatment team.
I was on 40mg of olanzapine for 17 years, which is also a very high dose for that medication, but I never developed TD or EPS. I read that med is less likely to cause it too (but it could).
For the last few years I have been on 60mg Latuda. It’s a much better medication. Works well and no side effects so far.
I have TD. I’ve tried both Austedo and Ingrezza over the last three years or so. FYI- Ingrezza takes a long time to reach maximum efficacy. I no longer take anything for my TD as nothing was effective. Mine is such that I cannot drive, cannot watch TV, things like that. The next step is to see about Botox for my eye (TD-induced blepharospasm). I’m not sure if my insurance will cover it as they already do Botox for migraines. If I can only have Botox for one of the two, I will choose migraines; mine are near-constant and debilitating. If you have any questions about TD, I can do my best to answer. I’ve been to two specialists, and I have an appointment with a third on Feb. 1st.
I was amazed at how easy it was to get the meds through my insurance. Years ago, they wouldn’t give me life-saving blood thinners, and I ended up with clots in my lungs and leg. The thinners were under $1k, and I only needed that type temporarily. Insurance companies blow chunks sometimes. Booo.
I have a cousin who has TD I think. He has Bipolar since earlier in life and now is in late 50s. Unfortunately, he is also on Clozapine.
His mouth seems to be shaking when he speaks all the time. He cannot even say words out correctly.
The doctors have lied to him that it is because of high sugar. This is because he is on Clozapine and no other medication seems to work for him. Even Clozapine provides him with a partial response.
I feel bad for him, and wish myself better for my future when I see him.
I am on Abilify/Ziprasidone combination. Anyone know whether TD is likely to occur in future with these meds?
Clozapine provides a very low risk for inducing tardive dyskinesia. It can cause it, don’t get me wrong, but if he’s been on other medication, from neuroleptics to SSRIs or even antiemetics, he could have picked it up from one of them. Why are the doctors claiming it’s due to sugar? Has he had an AIMS test performed? If not, he should request one. The easiest way I was able to figure out my TD was the ability to halt the unwanted movement for a period of time. If he focuses, he should be able to stop it until his attention wanders elsewhere.
The risk of developing TD on Abilify is given in a wide range (0.2 - 3.4%). Overall, in atypical antipsychotics, the annual rate of developing TD is 3.9%. This rate is cumulative, so the longer you are on medication, the higher your risk becomes. Please see the article below; I gleaned this information from it. It goes into more detail.
Ingrezza is the only one I know about. I had several tics when I was delusional that went away with antipsychotic treatment. I’ve seen other sz folks with TD and it’s rough, I was hoping to find someone on this site who has experience taking ingrezza for their TD to see how well it works and what the side effects are.
I took Ingrezza for almost a year (it takes forever to reach maximum efficacy). The 80 mg pill is pretty and shimmery purple. You titrate up, though, so you start at 20s or 40s; I don’t recall. I didn’t notice side effects, not even something as simple as dry mouth. My TD did not change from Ingrezza. I stayed on it long enough to reach the supposed maximum effect, then let my doctor know that it hadn’t helped and requested to get off it. No need to be on meds that aren’t helping. I stopped it a few weeks ago with no ill effects from quitting. Is there anything else you’d like to know?
There’s also Austedo, which was developed for Parkinson’s but can help TD. It didn’t help mine anymore than Ingrezza did…