Hi Am I the worst hopeless incurable wretch case with the worst incurable symptoms in the whole world!?Am I the only one with this diagnosis simple schischizophrenia in the whole forum and planet!? I suffer from all negative symptoms even more then all and they are very strong I only lie down 20 hours per day I am like dead i don’t have motivation for nothing its very very hard to take a shower or brush me teeth 1 for 10days or 2weeks I don’t have ambition I don’t have emotion exept fear and anxiety I don’t laugh I don’t have sense of humor i dont have desire for nothing
Nothing interesting for me nor movies nor books nor exersise nothing like before i get sick from marijuana before about 3years Also my mind dont work properly i cant concentrate i cant organise i cant think very well even more then all of this I feel that i am the only one with so bad negative negative simptoms even in this forum i feel that i am most badly from all people here and out there and nothing work for my symptoms nor drugs nor supplements I tried all supplements over the sun the last hope was sarcosine but it also don’t work I bought 1from smart powder 1 profrontal and 1from brainvitaminz nothing work I wonder how it work for most people i guess i know they are not so badly
Please Please Please tell me that there is a hope chance to get better that there is some treatment for negative symptoms because this is not life this is torture living hell !?!Some medicines… maby antidepressants or something else…?
I did this for for a long time, somewhere between 3 weeks and 2 months. my sense of time was awful because I was psychotic and never left the house. I was totally psychotic. I thought I was keeping somebody alive telepathically, and I had to focus all my attention on it so I just lay in bed and thought of “him” breathing. It was a total waste of my life, I failed out of community college, but I preferred it to the violent hallucinations I got later on.
You’re not alone. Currently, I’m better. Been on sarcosine for 4 months, 2-4 grams every day. Also, Abilify, Prozac, Lamictal, and buspar are prescribed to me. I still deal with negative symptoms, but they are now manageable.
Before, I could not finish reading a comic strip of like 3 panels, too much noise in my head, I would just give up and sit there with my head in my hands. Now, I have completed graduate school which required intensive reading. It comes back, slowly. Our minds take time to heal from the shock of psychosis.
I hope you will get better soon!
I’m on abilify, and abilify is supposed to be good for negative symptoms.
You been like this for 3 weeks?And call it long time !?I am like this 3years and sadly no views for change Do you think prozac and lamictal help you with negative symptoms or buspar? I continue take sarcosine 2g half year whithout any efect . Do you think it is a good idea to increase to 4g you take 4 or 2g?@HQuinn, @everhopeful How many mg abilify you take and when on what doses start working? I took it 1 month from 2.5mg to 7.5mg and it didn’t help at all Maby I have to try bigger to max 30 doses
[quote=“HQuinn, post:2, topic:50497”]
I hope you will get better soon!
[/quote] Thank you !
took it 1 month from 2.5mg to 7.5mg and it didn’t help at all Maby I have to try bigger to max 30 doses
I’m on 10mg, but everybody is different. The minimum therapeutic dose for schizophrenia is 10mg though.
well, the prozac gets me up and not depressed and lying in bed from depression (depression, not psychosis, for psychosis I take Abilify).
The buspar helps with anxiety.
The lamictal helps more with depression and mania–it’s a mood stabilizer (I’m schizo-affective).
Yes, I started at 2mg at first, but I upped it to 4 mg a day. I felt the difference. The first time I took sarcosine, I felt immediately different. After a few days though, I’d gotten used to that, so I asked szadmin how high of a dose had been found safe to take. He said like 4 mg a day, so I started on that.
I have gotten used to the effects again. However, I’ve been rationing my sarcosine this past month because I procrastinated on buying it and now I’m still waiting on the sarcosine to arrive. I feel the difference moving down from 4 mg to 2 mg. I don’t like it, I’d rather be on 4 mg, to be honest.
I have taken alpha-gpc and peracitam (smart drugs “nootropics”) to compensate for the lack of sarcosine and it seems to do a decent job of keeping me upbeat and focused, but I’m just taking it until my sarcosine comes in the mail.
Maybe you grew tolerant to your sarcosine level and just need to increase? I don’t know, maybe the admin here would know.
PS Abilify didn’t work for me completely until like month 3, and that was at 20 mg.
You are very welcome!
Do that help you with negative simptoms and how exactly and when it started to work and why not 30mg
10mg worked. I did try 20mg but couldn’t tolerate it side effect wise (anxiety) . It probably helped me more with negative symptoms more than other APs I’ve tried, but I still have things like avolition etc.
Have tried any cbt or dbt therapies? You need to get into a forced routine if you expect any progress.
20 hours a day of sleep is also a routine.
I deal with this stuff too. If I allowed myself I could easily sleep 20 hours everyday. But life goes on.
Hope you feel better
I feel your pain but take my word for it, there is always someone who has it worse than you. Being diagnosed with schizophrenia is synonymous with suffering. No one who has schizophrenia has not suffered. That’s just the way it is.
Some people claim they have “mild” schizophrenia, I seriously doubt that that is possible. I’ve met and lived with and been hospitalized with a number of other schizophrenics over the course of my 36 years with this disease. I’ve heard some of their stories and I’ve observed them and I have not seen one of them who had it easy with this disease. I have not run into anyone who can say their disease was mild.
But anyways, I can give you a brief part of my history and hopefully you can get something out of it. And by the way, I was diagnosed with paranoid schizophrenia in 1980 when I was 19 so like I said, I have been dealing with schizophrenia for almost 36 years. That’s a big chunk of change.
Anyway, I went into my first psyche ward when I was 19. I was in bad shape. After two weeks my parents found me a place to live which was a group home for schizophrenics. I’ll be brief. I went through hell there. I suffered a lot. Every minute of every day for about a year. I was 19 and I had no money, no girlfriend, no friends, no car, no school, no sanity. And that was true for the entire year. I had weird symptoms. It could take me an hour just to get dressed in the morning in a pair of jeans, a shirt, and socks and shoes.
I spent months sitting alone in an old dirty chair out in the backyard fighting to keep my sanity. Every day I felt like I was going to go stark raving mad. I felt hopeless, suicidal, lonely, crazy. I did not improve at all for that year. I saw no hope, no light at the end of the tunnel. I saw no end to my misery, no sign that I would ever get better. But I survived.
After spending a year there I moved back into my parents apartment. I lasted two weeks before they had to put me in a psyche ward again. From the psyche ward I was put in a locked psychiatric hospital for 8 months, where I stayed with a 100 other patients who were in crisis too. I got up at 8:00 a.m. for breakfast every morning and after breakfast the screaming started. After breakfast all my fellow patients for the next 8 hours would be screaming, arguing, cussing, threatening each other. And this is how it went until dinner time, every day of my stay there. But they put me on medication. It didn’t help me get better but I think it stopped me from getting much worse. I don’t know how many medications you’re tried but it’s not unheard of for people to try 6 or 7 medications before they find one that works. And so I’ve been on medication for over thirty years.
And my symptoms were horrible for 8 months. It was like torture. But then I got out. I moved into a really nice clean, safe, group home in a nice neighborhood. Things started looking up. My symptoms became more manageable. I started going to a day program 4 days a week. After 9 months in that home after a series of small steps, I got a job. I was 22 years old. I still had nothing but at least I was in a nice environment. I stayed at that job for four years and I was actively psychotic for a lot of that time. Well, eventually I got a car, a house to live in with two or three other people. I got a little money, a little power and control. I got pretty stable. I was doing good.
Then I got addicted to crack cocaine. I was addicted for four years and I went through the typical drug lifestyle. I was the victim of violence, I got robbed a couple of times, people conned me and I conned them. I often risked my life and my freedom to get my drugs for four years. Take my word for it, my addiction was not pretty. But I got clean in 1990 through AA and in the last 26 years I have not touched alcohol or drugs.
Well, I’m 55 now. A lot has happened since my disease started. I’m looking back on being employed almost steadily, albeit mostly part time, for the last 33 years. I got my license in 1997 and I have owned and driven a car since then. I went to college and I need just four more classes to graduate. I lived on my own for 20 years, usually renting rooms in peoples houses. I lived by myself in a studio for 6 years while working and taking online classes. In those 6 years I lived like anybody else. I shopped for food, I cooked, I kept my studio clean, I went shopping for shoes and clothes when I needed them, I made and went to all my appointments with doctors or Social Security. I even had my own cat, lol…
But my recent story is a little bad. 8 months ago, I had a room in someones house. I was working, taking classes. But then my mom died. I was under a lot of stress and my moms death tipped me over the edge. I lost my housing, I couldn’t drive, I had to drop out of school and I had to take two months away from work. and I had to go into the hospital for two days.
I’m just telling you this to illustrate that even when you’re doing OK life is going to throw you an ugly curve ball now and then. Life does not always go smoothly and it doesn’t always have a happy, fairy tale ending. I don’t want to paint an unrealistic, rosy picture of life.
Bad stuff happens to everybody, no one goes through life unscathed. No one. But life isn’t all bad. I’m back at my job, I got a new 2012 Volkswagen car, my living situation isn’t all I would like it to be but it is not that bad. I’m slowly getting back on my feet, I’m getting ready for another round of life’s ups and downs.
And as I write this, the weather is great, I’m relaxed and looking forward to dinner and a nice calm night so I can get up tomorrow and go to my appointments and maybe over to my sisters house for dinner. I really do hope you get something from all this. I can’t solve your problems, I can’t gurentee how your life will go but I hope I am instilling a ray of hope into your life and as you can see. It is possible to make great turnarounds in life.
I came from the bottom of life with nothing going for me, but look how things changed. Most people with schizophrenia show signs of improvement as they go through life. But sometimes there are no answers and you just have to endure the pain and agony and put one foot in front to the other and keep trudging along. There is no quick fix to our problems. You don’t get better overnight. Everybody has different problems and no two cases of schizophrenia are exactly alike.
Some of your symptoms may get better some may not. But you just have to keep trying like everybody else. I don’t want to give you false hope, I’m very lucky to do what I’ve been able to do. But other people besides me have suffered and then made dramatic comebacks. You can’t predict the future.Many people improve. Some don’t. Or you may improve a little or you may improve a lot. Who knows? But it’s worth sticking around and try to let people help you. Good luck.
try pushing urself. activities dont bring as much satisfaction as they used to but do them anyways
We have to wait for new meds that will show up sooner or later brother.
Holy ■■■■…do some drugs…try adderal…or loratabs…these both boost my energy levels and interest…i feel social and i went from like you to a part time job…it doesnt help with hallucinations and voices but i can ignore them easier…i know we not supposed to say do drugs but ■■■■…if the meds dont work…
Hello @negativesymptomshell
I also have strong negative symptoms. Nothing works, I’ve tried all sorts of medicine and supplements. I am about to try pregnenolone next week, maybe it will make a difference, but I am not very confident.
There are several drugs in the pipeline which could help us with negatives. Also there is cariprazine, which has recently been released on the US market. I don’t know where you live, but eventually it will get there too.
Stay strong! Help is on the way, but it could take several years…
@Andrey try pregnenolone with l-theanine…
it will give good result…
google it…thanks
take care…
I’m worn out just reading your post.
If you type the way you think, it wouldn’t hurt to start with some quality spaces between your sentences,
then, pause, breath and recoup.
me too. negative symptoms ruin my life…