Saw my urologist

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He said he wants all my bladder stuff handled by oncology (cancer dr) instead of him. The only things he’ll be in charge of are UTIs, catheter prescriptions, and annual kidney ultrasounds.

I don’t have cancer but 100% of my bladder is precancerous with an extremely rare condition.

It did show some improvement in my last test oncology did though so that’s good.

25% of people with my condition go on to develop bladder cancer though so we have to keep an eye on it to make sure I’m ok.

He said I no longer have to drink a minimum of a gallon of water per day. I can drink 80-100 ounces per day if I want. I think I’ll stick with a gallon.

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Best of luck with your health @LilyoftheValley

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Thanks @Wave :slight_smile: 15

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So sorry you are going through that. How often do you need to get checked out by the oncologist?

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Every 6 months so that’s not too bad.

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I hope you stay healthy and don’t have any problems with your bladder.

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Thanks @HollyHobbie . I do also have a neurogenic bladder which means my brain no longer sends signals to my bladder to contract. That means I can’t pee without catheterizing myself every few hours.

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That’s hard @LilyoftheValley. Hugs. :heart:

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Thanks @HollyHobbie . Day to day it’s easy. But I have trouble when it comes to figuring out how to do it in a sanitary way in public places.

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I’m glad it worked in better and easier way for you @LilyoftheValley …

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Thanks @anon83704208 1515

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I hope you’ll be ok.

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I hope you’ll be okay too and don’t get bladder cancer.

@LilyoftheValley

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Thanks @Zoe . I don’t think I will now that there’s finally been a little improvement

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I’m so happy to hear dat.

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Hope you will enjoy your life despite this.:pray:t4:

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Thanks @Truemist8 :slight_smile:

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