Hi everyone…
I am 7 months off an antipsychotic. .the latest for 5 years was latuda…but been on every antipsychotic there is for over the span of 17 years…the new ones.
My breakdown was recreationally induced…and was put on Geodon in 1999.
Did not find out my genetics until 2014.
I have been through tardive symptoms. .or extra pyramidal symptoms, beginning with Seroquel in 2003, and now have tardive akathisia and a bit of dystonia.
No tardive dementia. .but tardive akasthsia is enough to make you feel like it!
I have mthfr (do not metabolize dolate…sub methylfolate:)) and ca channel dysregulation problem.
My comt is ok…b12.
Point is…like most who have had the metabolic effect with antipsychotics, I cannot feel myself…my personality…fine underneath it all except anxiety and insomnia…ie do not even have a diagnosis…
Tardive akathisia is humiliating and terrifying…
You know who you are but its like personality amnesia…
With me bahbaad.
Feel outside of self…of course memory and cognition problems…none of which were happening before I got put on geodon.
I was young and foolish…still recreating after college…so a therapist thought I needed them.
Not recteating of courae now and have not since college.
Was a college thing like many did…
Point is is my psychiatrist said it is going to take a few years to recover…and he has seen this before.
2 years he said most likely.
Please give me hope snd support from those going through recoverable tardive akasthsia or other eps symptoms in a recoverable situation!
5 to 8 percent do not recover.
My heart goes OUT TO YOU!
Over 17 years been on them all and was just compliant…
Misdiagnosed because of a recreational break.
My heart is about to pop.
I know I will be able to recover…ya just do.
Just need mahaahaasive support though I have therapy.
You guys or someone in this group might have recoverable akasthsia for certain that can give me hope…and perhaps what to do to help ot…of course exercising…reading…plenty of aleep and water and sunshine.
Just have such bad social anxiety from it now. But I HAVE to do THIS for ME.
My yoga mat…running…eating right I can do…
Its the waiting…the dissociation. .the blurred vision…temporary short term memory loss…the agitaion…not knowing who the f* you are…
Major problems thinking.
My whole team is behind me.
After 17 years I just could not take antipsychotics anymore…
Getting by for now on klonopin and benztropine, a histamine used to treat tardive withdrawl symptoms all due ro lovely antipsychotics.
If they work for you pleaae don’t take offense.
For me…they have ruined my life.
I am 40 now…and ready to start over…but I will not get my dopamine going by sitting around.
Please give me strength, hope, Faith, and enthusiasm!
Most off all, I need to here that this is not my fault…and that I will in fact come back.
Peace to all of you…
And have a Happy Sunday.