I have a ‘fair weather’ support system. My family want nothing to do with me when I’m symptomatic. Also I’ve been refused entry into hospital when psychotic. Now that I don’t need help, everybody’s back. Doctors/family etc.
The bottom line is I’m pretty much on my own.
Do you feel like you’re ‘on your own’
0 voters
Not right now, but I will be some day.
What about the blonde guy with green eyes and a horse 
Your Prince Charming will come one day @Minnii
I know you want to have independence but you won’t be alone with it!
That’s wonderful, I still believe 
My parents are great but they find it hard when I am ill. I used to phone them in the early hours all distraught. This was really tough on them.
Now I either phone my CMHT during the day and a support line at night. I much prefer this than imposing on family.
Things are still hard though. Sorry you feel you are on your own @everhopeful - just know you are not alone here. J
I hope this doesn’t offend, but sometimes I think , in like ten years if me and you both are single (which we neither of us will be anyways)…we could…me and you…get married in a very resentful way. Like “ughh, I have to marry Jon” and “ughh I guess I’ll marry matilde”…when deep down in our hearts we would like it and get along, but approach it with resent, based on how our relationship has gone Lol. Based on how you kind of remind me of my mother. It would be a resentful marriage. Lol that’s just my funny fantasy in my head of if we were to ever get together (don’t worry I do it with everybody on the forum lol). Or am I off base here?
Ahahah this is great. Sure ttp, I’ll marry you when I’m 50.
Even in the short periods I was on the street I didn’t feel too alone. One time I was in jail and I was worried that they were going to forget that I was there and keep me incarcerated for the rest of my life.
I used to always think “when I’m 50 I’ll finally be able to get married 
”. Like women will get fed up with jerks by then and go to good people like me. And they’ll have all this life experiences and I’ll be like a new born baby when it comes to relationships 
Don’t make me wait that long minnii!
But now I think it’ll come much sooner
I’m cooler than I thought I was gonna be 
We’re good people, I’m sure we’ll find someone before that, if not, here I go US of A. By then you’ll have free health care 
I have free health care cuz I’ve been on disability for 2 years+
Medicare part b with a drug plan and extra help
It’s nice I can’t lie
I wonder if I get off disability do I keep Medicare 
Maybe I can come to Portugal …wait never mind what the heck would I do there I don’t speak Portuguese!
Portuguese isn’t that difficult, and there are no guns here 
Or Trump, or Kardashians
This is hard to answer.
I am on my own but my family sends me 500$ a month and have my insurance under my dad’s employer.
When it comes to doctors, I try not to bother them, and when I do it is usually just me asking for more of something or something very serious. But they are there if I need them. I just try not to bother them. Psychology and medicine are different to an extent…the psychologists seem to have more weight with my case than anyone else.
But I am enrolled in a Doctor of Psychology program…and I just graduated undergrad with lots of honors and publishable work…so with that said, I think it shows capability to help others on my part when I do my best to help myself- which means contacting the docs as a last resort.
I sort of reject details and focus on understanding ideas. I don’t like stuff like getting mail and running errands but I can read and write all day, also workout at an advanced level, without any problems except not knowing when to stop.
Hi @everhopeful as far as family goes, although I have the support of everyone, I feel like no one wants to talk about any symptoms I might be experiencing.
My sisters won’t talk to me about schizophrenia at all. And my mother doesn’t know how to handle a conversation in which I might bring up hallucinations or delusions.
My partner is very good though. So I guess I’m not entirely alone. I still voted that I do feel all alone though.
I had a nice support system in place. Then, my apartment caught fire and I was burned on about 13 percent of my body. Try to finds support under those conditions!
And when I was well enough, my family doctor was glad to have me come for a visit. And when I was well enough, my psychologist would speak to me in his office.
My girl friend was kewl when I was down and out, however.
Jayster
I’ve gotten too old for anyone to care anymore whether I’m symptomatic or not. Even I don’t care anymore. I have been self managing for many years. I wouldn’t go to a hospital if you paid me. My family gives me money. I can talk to them, but they aren’t interested in the SZ. I am very close with my stepfather. He treats me like he would anyone else, he says.
Im Absolutely on my own.
But after 20 yrs of NOT needing the herd to define me ? it aint that bad.
It is strange that you were refused entry when psychotic. I was in the hospital when psychotic when I drank draino. It was the ER so maybe that is different. Although they didn’t do anything so it kind feels like they wouldn’t help. So far the doctors seem to want to help as long as you can pay. I found a free healthcare place that is funded by the state. Also my family is willing to help me. They are supporting me while I look for a job since I got rejected for disability. With the way I was unable to get unemployment benefits it seems like the government isn’t very helpful. Well except for the Emergence Health network. I don’t know if they are in places outside of Texas but they are free.
I have family but don’t go to them much,if at all, about the psychiatric stuff and they seldom ask me. I’ll from time to time post something on facebook about how I am feeling but replies will be few and far between.
In terms of support I can access quickly I feel I am very much on my own. I can’t just pop round to family if feeling bad.
Psych services are there and I’m supposed to be able to talk at the depot clinic but the reality is rather different. That’s very much down to a combination of they want to get you out of the clinic fast ,and a reluctance on my part to say much because in the past when I sought help I was accused of being awkward,demanding and troublesome. I got past that a few weeks ago and actually pointed to a problem instead of giving my usual blasé not too bad/ so so response. There was a deafening silence and for all intents and purposes I might as well as have been talking to myself.
They are happy if I turn up for my injection and that is their primary concern, anything else is very much secondary.
One of my beefs is that a lot of stuff goes unnoticed because not enough of a whole person(holistic) approach is taken.
First episode I dealt with on my own. That was tough, but also my (deluded) decision.
Second episode I had lot’s of support from my family, fortunately for everyone, it was only very serious for a very short period.
For the times in between, when it comes to dealing with memories and negative symptoms, I rely mostly on my friends - they’ve been just awesome. My parents prefer to forget about the psychotic episode and pretend all is well now. They do not acknowledge negative symptoms, cannot comprehend, or simply will not accept. It’s okay, as long as my friends are around, I’m covered.