Notes about my sleep

I’d give them to my doctor if I thought he’d read them.

-I do not naturally become sleepy until at least 4 am. With training I can shift that a couple hours earlier. It is very difficult bordering on impossible to go to sleep earlier than that though. I used to think I had insomnia growing up as it took me hours to fall asleep. When I fall asleep at my natural bed time however, I fall asleep within 10 minutes.

-I do not feel rested when I wake up unless I get at least 11 hours of sleep. This is not due to waking up during the wrong sleep stage, as I allow myself to wake naturally without an alarm.

-After 1-2 hours of waking up initially, my brain is hit by a wave of powerful sedation and fog that lasts hours. I cannot concentrate at all during this, and completing even simple tasks is very difficult.

-I can alleviate this by napping, during which I experience hallucinations, voices, sometimes sleep paralysis and vivid dreams. (Can be highly disturbing)

-The sedation does not wear off until 5 or 6 pm at night.

-If I drink (large) amounts of caffeine, it can make me feel normal for a time. However it does not prevent the sedation, merely pushes it back giving me a few more hours of alertness before it strikes. This can mean when the sedation does come it lasts until as late as 10 pm on some occasions. If I try to go to sleep for the night during one of these sleepy spells, I simply wake up very shortly after and am unable to fall back asleep for hours.

-I feel well rested after just 8 hours of sleep, even 7 is ok.

-However I will still be hit by a wave of sedation 1-2 hours after waking up the next morning unless I take modafinil

-I do not get the sedated feeling during the day. It does not energize me, I can still feel tired, but I am not SLEEPY. I can focus and go about my day normally and function well.

-Caffeine effects me as I imagine it does a normal person. It gives me an energy boost. If I drink large amounts of caffeine on this med it makes me very jittery and crazy. Just a simple cup of coffee works fine.

-If I do take a nap for whatever reason (maybe I didn’t sleep well the night before or just had a long day), I do not experience hallucinations, voices, sleep paralysis, etc. If I do fall asleep at all it is very light. I can’t take modafinil too late in the day or I have trouble getting to sleep at night, not because I’m not tired but because I’m not sleepy.

-With 11 hours sleep REGULARLY, I do not experience any symptoms of psychosis. Even under stress or other regular triggers the symptoms will not appear or if they do are very very mild and brief. I also do not appear to get sleep spells.

-With 8-9 hours of sleep regularly, my symptoms are there but mild unless aggravated by typical triggers i.e. stress in which case they can get bad.

-Less than that regularly I can get really bad symptoms, and even go into psychotic episodes. Since I have gotten better at managing my sleep and have literally changed my life to accommodate my sleep issues I have not had a major psychotic episode in 3 years now despite not being on an antipsychotic for the grand majority of that time, only for a few months here and there.

summary: Sleep is incredibly important and I’ve drastically changed my quality of life by targeting it. I don’t know if all of this truly is narcolepsy or what, but I am firmly convinced my issues are rooted in my brain’s fundamentally dysfunctional sleep system. While I wish I could regularly get 11 hours of sleep it is INCREDIBLY hard for me to do and have a life on top of that, especially when my circadian rhythm is practically backwards from what a normal person’s is. I hope some day we can understand more about sleep and learn what may cause issues like this and their connection to mental illness.

1 Like

I should get a sleep test. I prob have some sort of sleep disorder.

Mostly hypersomnia. But times I can sleep 12-16 hrs then get up for a few hours then sleep another 10. It makes no sense to me

Yep that’s how I am off medication, my brain could literally be content sleeping 100% of the time. Bad…

You also need to take psych medication into account. When I was on geodon my sleep spells were much much worse and I was sleeping 13+ hours a day for example and I could not physically stay awake during them to the point where it became unsafe for me to drive while on that med.

However I’ve had this issue since I was 15 which was long before I was on any meds. I didn’t start meds until I was 19 and even then there’s not any I was on for more than a year. Most only a few months if even that.

1 Like

HEY WHO CHANGED MY TAGLINE LOL :joy: :triumph::joy:

this is discrimination

1 Like

Yes I’ve also had this issue probably since I was 8. There’s Christmas videos of me looking like a zombie at 9am barely opening presents and just tossing them aside :joy:

I’m not on any psych meds or any med, so I can at least rule that out

1 Like

Hmm you should definitely get sleep testing done then!! Modafinil changed my life. I am not functional off this med. Life is absolutely miserable to get through.

1 Like

This topic was automatically closed 90 days after the last reply. New replies are no longer allowed.