I have had major concerns my care team are keeping secret folders on me, this gets worse when I become unwell and it manifests into one big conspiracy against me. My community nurse arranged for all my NHS folders to be shipped to the community learning disability office, All 8 of the folders which are dated by year. It had all my medical notes in them. I had 2 hours this morning to read through them (we could only book a room fro 2 hours) and we are going to arrange to meet up in two weeks for another session reading them.
I think my community nurse is being very transparent with me to ease my anxieties around secret folders.
I was looking for information on me being a faker because I feel liker a faker because I genuinely think I have nothing wrong with me. What I got from the folders is that my medical team have been very thorough and I didn’t read anything that suggests I am a faker.
Any anybody else ever had access to their medical folders? Have you been given the opportunity?
No I’ve never seen mine. Sometimes I want to read it though just to see what they think about me. I don’t think about being a faker but I wonder if they think I’m nice or a pain in the ass to deal with.
I’m glad the have given you this chance to look through the records and put your mind at ease. I hope it helps for the next time you’re unwell.
I have often wondered what my pdoc and therapist write about me but i have never requested to look at their notes. I hope looking at your notes has given you some peace of mind.
It was upsetting reading all the child background stuff. They couldn’t get history from my parents as I was abandoned when I was 9 and put into care. It looks like they obtained my childhood records from child services. It stating we almost have a feral type upbringing eating out of bins and stuff.
I got to look at my (WAIS) IQ report. It was different to how I imagined. That was very interesting reading, I asked for a copy of that report(as I couldn’t take from files.
i’m glad you had a positive experience reading your medical notes, i would love to read mine but i heard they could be condescending, but they probably are not, i think it would be nice to look back and see how far i have come.
I only managed to read the first year folder when I came into services, that was 2010 and I read the 2018 folder. When I first came into services they was concerned I was being exploited by a friend (which I was) and that I was living in bad settings and not coping, the LD safeguarded me. They was concerned as well as I was talking about my neighbour trying to kill me. They said I was guarded and suspicious only talking about the conspiracies when drink. The psychiatry reports are particularly good reading as its not what I was saying (I was guarded) but my body language they looked at, no eye contact etc. They thought I was Autistic. For awhile the care team thought I was autistic in the first few years.
One time my counselor read to me what he wrote. It was interesting. But I think if I think about what people are saying about me I’ll end up freaking out. I try to put it out of my mind.