I desperately want to read the secret folders my pdoc/care team are keeping from me!!! Its literally destroying me. They say they are being transparent, every month my care manager shows me the enteries they write in the clinical log but I am absolutely convinced they are withholding information from me and its making me really obsessive about it and anxious. I have fantasies about hacking their system and finding out what they write about me. I think the folders contain more then just pdoc stuff and will explain alot about my beliefs.
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Well…your medical record legally belongs to you. HIPAA regulations allow you to request your personal medical records from your provider, considering you are not a minor. The doctor can charge you for the reproduction of them, as the originals are the property of the treating doctor, but that’s about it. There are no “secret” records. If you really need\want ones that were refused to you, you can contact your local and state medical society, state licensing department and a lawyer.
I worry they are keeping info from me as well. Every 3 months after my appt. i get a clinic letter copy - but i swear they have ommited information from it. The paragraphs dont make sense - i swear its edited.
And the local council seem to know far to much about me as well - and i know they can get whatever information about me from the mental health team, because i stupidly signed a full disclosure document with them.
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I have gone thought every possible avenue to get my notes and from my medical team they say they’ve been open and gave me everything but they are keeping secret folders from me. I know for a fact that is the case. I can’t go any further with them because they keep denying it.
I’m curious, how do you know that “for a fact”?
Are you sure your paranoia isn’t playing tricks on you?
I can’t see any logical reason as to why they would keep things from you. And anyways, so what if they did? You know more about yourself than they do.
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I assume your from the U.K. like me? I have gone through every possible avenue, freedom of information, information governance, GP computer notes but they are still withholding folders from me.
because things have been omitted from documents. I feel for certain they are withholding whole documents from me. I think my pdoc has a vendetta against me. I do think its more then paranoid beliefs because I have been talking about this for years even pumped full of antipsychotics.
No way do I want to read my notes.
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How do you know things have been omitted? And why does that mean they’ve got secret files?
Sometimes they omit things because they aren’t relevant.
And sometimes antipsychotics don’t take away symptoms completely.
Paranoid delusions are hard to get rid of.
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Yes im in the Uk, South Coast. Sussex. I havent actually confronted them at all yet about it. But i know there are some pretty damming NHS records hanging around from when i was un-diagnosed that i wouldnt mind reading. Cos they treated me like crap for years at A + E before i was found to be Sz. Maybe i will look into it now.
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I’d like to see my records but it would cost me money and it seriously doesnt mean that much to me unless i want to use information for my book,
Its not that important what they say about me anyway bc i know what i am, i know who i am and i don’t think i am a bad person and thats for sure,
They mean â– â– â– â– to me all my p/doc is good for is getting me disability benefits lol
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I’m from Nottingham. My community nurse sees me every couple of weeks They use a system called RIO (in notts) which is a online notes thing where all medical professions write in it regarding me, e.i nursing reports, day centre, depots injection, pdocs notes. yesterday he lets me read my RIO notes like every couple of weeks because they say they have transparency and and to ease my deep anxieties around things (conspiracies) I noticed on the doctors reports page their was quite alot of things missing such as a gape between september 2017 to December 2017… Not pdocs noted all all when I was unwell at that time and started on a PRN psychotic meds. That is weird especially when somethings should off been written in it.
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your obsession sounds delusional to me…I would share this with your psychiatrist and see if he can adjust your meds.
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Happy Cakeday @InnerCircle!
Do you think I should write a email to my community nurse?
Sounds like a paranoid delusion, why your pdoc should have a vendetta?
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Thank you! Â
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