Do you remind yourself of someone? Because sometimes when I’m depressed I’m simply not being myself. We pick up conditions of the people around us and sometimes that’s not a good thing but it’s part of being a social animal.
@anon65600981@shutterbug@antidepressant044
Thanks friends. Sometimes I feel exceptionally sad about my rare disease. Some days I just feel weaker. Thank you for being here. @PinCushion
No, not really. My rare disease alone makes me really sad. The future is kind of set for me unless there is a cure out there. It just makes me really, really sad. Thank you for being here.
Basically a form of muscular dystrophy caused by the TTN gene. Causes degeneration of the muscles and progressive atrophy. Also causes bunch of breathing and heart problems, as well as joint pain.
No cure, no treatment. Nothing.
I mentioned it to couple people before but I don’t talk about it often because I feel like people are annoyed.
@Daze they diagnosed me via genetic testing. My variants are still not well-known so it’s just a general type right now. It’s just the beginning. @Loke yeah it’s a bit similar to EDS but just a different category of genetic diseases!
Is EDS genetic? I didn’t know that. I used to always ask God why was I able to dance and my sister no. (I took dance lessons as a kid). I didn’t think it was fair.
Yes, it is. EDS and MD are both genetic.
I felt similar to how you felt about your sister. After I was diagnosed, I thought to myself “Why me?” because I was just so frustrated with the disease. I’m so sorry to hear about your sister’s EDS. I hope she’s doing ok.